This page is closed
but Sarah Wills has a new page...
Check it out

Help Sarah

$33,732 of $60,000 goal
Given by 419 generous donors in one year

Help Sarah

Palmerston North, Manawatu-Wanganui

Sarah has hypermobile Ehlers Danlos Syndrome, a connective tissue disorder which effects the entire body. hEDS causes many issues with her digestive tract, over the last 7 years she has seen doctors, undergone tests, procedures, trialled diets & medications, however last year her health spiralled. Sarah vomits every time she eats or drinks and experiences debilitating pain. Symptom intensity has increased over this year & in the last month her health has spiralled further. Pain has spread everywhere, she forces herself to have tiny amounts of food/fluid. It’s hard to leave her bed, the pain, combined with a severe lack of nutrition - she is physically & mentally exhausted.

Dr Yeo is pretty sure based off my symptoms and scans that I will be eligible for the operation. I just need to have a diagnostic block done in Auckland first, which is done privately under general anaesthetic. If i have no pain when eating after the block, that will mean the surgery will definitely help. I’m hoping the block won’t be too far away since it’s being done privately. I will keep you guys updated on how that procedure goes. I’ll have a call with dr Yeo after the block to confirm the surgery. My gastro in Wellington is also going to order a couple scans to check for other compressions that can be found with MALS.

Sarah has a vascular compression called MALS, a compression on the main artery that goes from the heart to stomach and other organs. Vascular compressions are very misunderstood, getting help in NZ is proving impossible. Surgery can fix the compression and we believe it will improve Sarah’s quality of life & stop the pain. Sarah is having a zoom call with a surgeon from Sydney tomorrow to discuss surgery options & scans for other vascular compressions, commonly found in MALS patients.  If scans show other compressions, we will need to go to Germany as there appears to be no doctors closer who can fix all these compressions. Professor Wilhelm Sandmann has an excellent team and does a lot of research on these issues. We’ll need to travel for surgery so frequent updates - Sydney or Germany?

Use of funds

Tests, consults, flights, hotel costs and possibly surgery fees.

Other page links

Read more

Latest update

Update image

Health update   9 March 2023

Thank you to every single one of you who donated and gave me a second shot at life. I will forever be grateful.

I have worked so hard to get better after my operation and it wasn’t easy. This has been such a huge battle, this journey has definitely left me with a lot of trauma and sometimes it’s really hard to think about what I had to go through. But I’m alive and doing so much better. I have been able to gain healthy weight, enjoy life again and experience new things. Not quite ready or able to work yet, but that’s my next step ! fully recovery isn’t until one year post op, today is 9 months since my surgery! Im still working on strengthening my abdominal muscles, which will help a lot with my severe back pain. Everyday is different, some days I have flares and it can be very scary. Im always terrified of things going downhill, especially when my body decides it doesn’t want to tolerate any food. Thankfully I always bounce back. I still deal with daily pain, which will never go away because of my connective tissue disorder. It’s still a challenge to eat and sometimes it’s very exhausting, but I push through the pain everyday. I’m just grateful that there have been massive improvements.

Once again, I am so grateful for all of you, thank you so much for your generosity. You are all amazing. Here’s an updated picture from Harry styles the other night

Share this update

Read 21 more updates

Read more

Latest donations

Victoria on 04 Nov 2022
Sarah, you are brave beyond measure! For 30 years, I've dealt with several chronic, conflicting, yet coexisting illnesses and more specialists than I can recount. You're told to "advocate for yourself" but if no one listens, this can feel like a worthless effort. I pray for your recovery and swift return to a more "normal" life!
Sarah Wills

Thank you so much. I’m sorry you know first hand what it’s like the deal with horrible pain and symptoms and a medical system that doesn’t always have your back

Sarah Wills
In honour of Sam Morris, who suffered...
In honour of Sam Morris, who suffered... on 02 Nov 2022
Sarah, I really hope that you will continue to make further progress now that you've finally had your operation. Well done on being proactive and thereby saving your sanity - and your physical health too. Your Mum must be absolutely exhausted by everything that you've been through, and by being there for you in Germany too. God bless mothers!!!
Sarah Wills

Thank you ❤️ My mum is definitely my biggest supporter, I don’t think I would have survived this without her

Sarah Wills
Guest Donor
Guest Donor on 31 Oct 2022
Sarah Wills

Thank you ❤️

Sarah Wills
Guest Donor
Guest Donor on 27 Sep 2022
Blessings for your recovery
Sarah Wills

Thank you so much x

Sarah Wills
Heather & Brian
Heather & Brian on 03 Sep 2022
So glad you got yr surgery & read about it. Trust you recover well.
Sarah Wills

Thank you 💕 doing a lot better

Sarah Wills

Who's involved?

Sarah Wills's avatar
Created by, and paying to a verified bank account of, Sarah Wills
Page Moderated
The page has been checked by our team to make sure it complies with our terms and conditions.


Page Q&A

4 questions have been asked already. Check them out and ask yours here.

Any concerns?

Report this page
This campaign started on 22 Feb 2022 and ended on 22 Feb 2023.