Help Sarah

on 1 Aug 2022

Megan asks

Hi Sarah. My name is Megan, I’m 20 from Hamilton. I also have hEDS and POTS and basically identical symptoms to you but I haven’t been diagnosed with any compression syndromes. I would love to chat with you if possible :)

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on 13 Apr 2022

Lilac asks

Hi Sarah;

Have you tried the 4-7-8 breathing technique taught by Dr. Andrew Well? It is simple and easy, but delivers powerful healing effects. Breathing meditation is one of the things I practice in dealing with my multiple health issues caused by a connective tissues disorder. It helps A LOT! You might want to try it while preparing for the trip. All the best. Lilac

https://www.youtube.com/watch?v=SQf53VLXNsU – Dr. Andrew Weil on whether breathing exercises can change your health.

https://www.youtube.com/watch?v=p8fjYPC-k2k – Dr. Weil explains how to do his 4-7-8 breathing technique.

Sarah

Hi! I haven’t looked into this person but I have worked with a few different people on mindfulness and breathing techniques. Breathing has always been one of my biggest struggles as it causes severe MALS pain. I’ve always had great difficulty with practising deep breathing. But I will definitely have a look into this and give it a go. Thank you xx

on 24 Mar 2022

Janine asks

Hi Sarah. You might remember me, I’m Millie’s mum Janine. Millie and I went to Germany October last year. Unfortunately it didn’t work out for her. But wishing you all the very best. You are so courageous. Sending you love strength and hope. If you’d like any info please don’t hesitate to ask. Janine

Sarah

Hi Janine ! Of course I remember you and Millie , I’m

Always thinking of you both and hoping you guys are doing okay ❤️ Thank you so much, this means so much to me x

on 20 Mar 2022

Daniel asks

Hi Sarah... our daughter has been through similar and there is light at the end of the tunnel... maybe when you r in aucks you can meet her

here is the story of what happened to us ... and i can say that she is sooooo much better now... she does have some eds issues but they are no long as bad as they were... https://www.whatdidjado.co.nz/news/how-contact-care-changed-our-lives

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