Help Summer smile

$11,990 of $30,000 goal
Given by 172 generous donors in 11 weeks

We are fundraising for 8 year old Summer who has been diagnosed with a fatal and untreatable disease called Batten Disease.

Cambridge, Waikato

This is Summer, Summer is the most kind and caring 8 year old girl who always loves to see people smile, she says that when she sees people smile it makes her heart sing.

2 months ago Summer's parents Ray and Vanessa noticed there was something not right with Summer's eye as it would move outward for no apparent reason, Summer was taken to the optometrist who prescribed her glasses but on further investigation it was discovered there was something a lot worse going on.

Ray and Vanessa were told there was a 97% chance it was a brain tumor but further specialist's discovered it wasn't a brain tumor but a fatal and untreatable disease called Batten Disease.

Batten disease is a rare and fatal disease of the nervous system, among its symptoms are vision loss, seizures, cognitive problems, learning impediments, poor coordination and balance, Eventually Summer will be blind, bedridden and unable to communicate.

As any parent can imagine this diagnosis is absolutely devastating and heartbreaking on a level noone should experience, Summer's diagnosis has shaken her family to the core and they are all still in a state of utter disbelief.

I met Summer and her family 4 years ago when they joined the Cambridge Fitness Centre where I look after Summer in the babysitting area, Summer and her family have become part of the Cambridge Fitness family, Summer knows every person in the gym adult or child and always greets them with a big smile and hello. All of our hearts are breaking for Summer, Ray and Vanessa and we are wanting to raise money to take the financial strain from them so they can spend as much time with Summer and experience all that life has to offer her before Summer loses her sight completely and the other syptoms of this disease start to take hold

Rebecca Tubman's involvement (page creator)

I look after Summer in our Gym creche and I am a family friend

Use of funds

The money will be used to take the financial strain off Summers parents while they nurse her and to take Summer on trips and experiences before she is unable to.

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Latest update

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She’s a warrior   24 November 2021

Posted by: Ray Mudford

Long day for our baby girl with lots of tests to find out how to help her sleep through her night terrors or weather she’s experiencing seizures through the night! You are so brave baby girl we love you so much and we have got you always

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Latest donations

Guest Donor
Guest Donor 15 hours ago
$10
Desa and Paul
Desa and Paul 18 hours ago
Wishing you a wonderful Summer Holiday with your Family :0)
Private
Joy
Joy 21 hours ago
Wishing you have a wonderful summer trip with your family Pretty girl🥰
Private
Christine and Rex
Christine and Rex 22 hours ago
Stay strong beautiful little girl. Looking forward to seeing photos of your fun times. Aunty Christine and Uncle Rex
$250
Bridget
Bridget 23 hours ago
Private

Who's involved?

Rebecca Tubman's avatar
Created by Rebecca Tubman
Ray  Mudford's avatar
Paying to a verified bank account of Ray Mudford
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This page was created on 12 Sep 2021 and closes on 12 Dec 2021.