Help Support 'Sophie' and Family through this difficult time

Hi Everyone,

The last few weeks have brought some real progress for Sophie, and we wanted to share a quick update with everyone following her journey.

She continues to meet milestones in her own time. Some of the highlights have been getting outside in the pram for fresh air and spending hours on low-flow support. These moments have meant so much.

Unfortunately, Sophie experienced a setback yesterday and has had to return to PICU for closer care. It’s another tough turn in her journey, but she’s in the best hands and continues to show remarkable strength.

On top of everything medically, her parents have also been facing a difficult battle to secure accommodation at the hospital along side Sophie — something that should be readily available for parents in situations like this, especially considering they normally reside in Dargaville. The ongoing uncertainty and strain around where they can stay has added yet another layer of stress during an already overwhelming time.

Still, they remain right by Sophie’s side through every high and low, giving her all the love and support she needs.

Thank you to everyone who has been sending kindness, messages, and support. It truly makes a difference. Sophie still has a long road ahead, but she’s fighting hard, and we continue to hope for brighter days ahead.

xxx Sophie's Family.