Supporting baby Liam and his family as they navigate the long journey of a life-saving liver transplant through Starship Hospital 🤍
Lower Hutt, Wellington
Our beautiful boy Liam is just 1 year old and already the strongest little fighter we know.
Liam has a rare genetic condition called Alagille syndrome, which affects the liver, heart, and other parts of the body. In Liam’s case, it has caused severe liver complications, and he has now been approved for a liver transplant. He also has butterfly vertebrae in his spine from T7–T9, another challenge linked to his condition.
Liam was our final embryo from our second round of IVF — our last hope after a long and emotional journey to have him.
We are now on the transplant waitlist, living day by day as we wait for the call that could change everything. Over the past year, life has become a whirlwind of hospital stays, specialist appointments, and learning how to navigate this journey as a family.
After Liam’s transplant, Danielle will need to stay with him at Starship Hospital for around 3 months while he recovers and is closely monitored. During this time, Dad will continue working and travel up on weekends to be with them while the family balances life between home, work, and hospital.
Watching your baby go through so much is something no parent can prepare for, but Liam continues to show incredible strength every single day.
If you’re able to support Liam or share this page, it would mean the world to our family. Thank you for standing beside us and helping Liam get the best chance at a healthy future.
With love,
Danielle & family 🤍
I am friends with Danielle and a fellow IVF mum
Funds will help with loss of income, travel to and from Starship Hospital, accommodation and daily living costs while our family is split between hospital, work, and home during Liam’s liver transplant journey.
An Update on Danielle's Donor Assessment 11 July 2026
We wanted to share a little update with everyone who has been following Liam's journey and keeping our family in your thoughts.
Over the past few weeks, Danielle has been undergoing extensive testing to see whether she could be suitable as a live donor for Liam. It has been a long process involving countless blood tests, specialist appointments, scans, and further investigations.
Unfortunately, after completing all of the assessments, we've been told that Danielle is unable to be Liam's donor.
While this is heartbreaking news for our family, we know the transplant team has been incredibly thorough to ensure the safest possible outcome for both Danielle and Liam. Although this wasn't the outcome we had been hoping for, we trust that every step has been taken with Liam's best interests at heart.
Our focus now remains on our brave little boy as we continue waiting for the call that a suitable donor has become available. The waiting is hard, but we remain hopeful and hold on to the belief that Liam's time will come.
To everyone who has supported us, shared our story, sent messages, donated, or kept Liam in your prayers—thank you. Your kindness has carried us through some incredibly difficult days and reminds us that we're not walking this journey alone. We are so grateful to have such an amazing community standing beside us.
Please continue to keep Liam in your thoughts as we wait for the next chapter in his journey. 💛
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