We need help to continue to pay for Keydruda (Immunotherapy Pembrolizumab), it is not funded in New Zealand for my husbands type of cancer.
Nationwide
In May 2017 my husband Jack Davis was diagnosed with terminal Metastatic colon cancer. We were told life expectancy would be 2 to 6 months to live. Palliative chemotherapy ( Folfox or Capeox) was offered to us as an option to keep cancer at bay so that my husband could live a little bit longer, probably by 6 -12 months, this was such a small percentage that this would work. Then we were told about a new drug Keytruda, Immunotherapy Pembrolizumab. A new drug that is still experimental. Which is not funded in New Zealand.
Prior to receiving this news my husband has been fighting cancer for the past 4 years. In December 2013 he was diagnosed with tongue and throat cancer and in March 2014 he had intense chemotherapy and radiation treatment. He battled this cancer and was all clear until 2015. November 2015 he was diagnosed with colon cancer. He had all of his large intestine removed and had a ileostomy for 9 months ( a bag) . November 2016 he had a successful Reversal loop Ileostomy.
The surgeon who preformed the operation told us that my husband was too young to have so many cancers in his bowel. Possibility that he may have Lynch Syndrome. Lynch syndrome is a rare inherited condition that increases your risk of bowel cancer and other cancers throughout your body. Lynch syndrome has historically been known as Hereditary Non Polyposis Colorectal Cancer (HNPCC). A number of inherited syndromes can increase your risk of bowel cancer, but Lynch syndrome is the most common. Our eldest daughter has Lynch syndrome and our 3 other children have yet to be tested. My husbands mother in the UK has Lynch syndrome and recently under went a full hysterectomy as a prevention to getting cancer herself. My husband was tested positive with Lynch syndrome PMS2+/- MLH1
In May 2017 My husband had a routine PET / CT scan and the results showed multiple FDG avid mesenteric, periportal and peripancreatic Lympadenopathy, and serosal disease of the bowel and the right iliac fossa. In Non medical terms, sorry you have terminal cancer. This news was the worse day of our lives. We were told, "Sorry you have maybe 2 to 6 months to live." Our lives were shattered.
So we were told about this new drug, that's not funded in New Zealand where there is some evidence that it works on patients with colon cancer with deficient mismatch repair, Lynch syndrome ( which my husband has ) .
So far we have raised the $87,257.12 from generous donation and we have also cashed in our kiwi savings for the short fall.Total cost for paying for 14 infusions of Keytruda has cost us $97,709.17.
Finally we are on the cost patient programme. Unfortunately we still have to continue to pay for GST and admin FEES for the drug for the next 14 infusions that will bring us up too 2 years of treatment , which is the recommended dose of being on Keydruda. A total cost that we still need to find is $15,862.98,( for 14 infusions). $1226.00 for admin and gst fees for each infusion of Keytruda given every three weeks at Manuka street hospital in Nelson..
Thank you if you can help in any way , all I want is my husband to live and to watch his children grow up. He has fought this battle so many years and this treatment is finally working . He deserves to have the opportunity to live. He is an amazing husband, Dad and Friends to many people. Please help.
The money will be spent on the cancer drug.
Updating on the Drug so far and what funds we need to finish treatment. 12 January 2019
We were told about this new drug, that's not funded in New Zealand called Keytruda, where there is some evidence that it works on patients with colorectal cancer with deficient mismatch repair.
So far the tumours have reduced and some have gone. which is a fantastic results from having this new drug.
So far we have spent $104,507.00 on the drug and we have another 11 infusions to go before the 2 year treatment is finished ( which we still have to pay for).
Jack has had 23 infusions and some of the tumours have gone and reduced in size. He has only 1 tumour left on his small intestine..which has stayed stable for 9 months and hasn't grown..., which is great news. Considering May 2017 Jack had multiple cancers and was given 2 to 6 months to live....The oncology doctors in Nelson are amazed in what the drug is doing.... this has been the results from receiving this new drug called Keytruda (Immunotherapy Pembrolizumab).
For a successful result to get no evidence of disease the drug has to be administrated for 2 years.
Being an unfunded drug we have been continuously fund raised to pay for this miracle drug.
We still have to pay to Manuka Hopsital in Nelson $1133.00 every three for the next 11 infusions ( 33 weeks left of treatment).
We still have a long road to go and we dont want to give up now. It has been a huge battle finding the funds for this, and we want to Thank so many people who have helped us.
Thank you, all we want is Jack to live and to watch his children grow up. He has fought this battle so many years and this treatment is finally working . He deserves to have the opportunity to live. He is an amazing husband, Dad and Friends to many people.
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