After receivng the devastating news that Brody is now "inoperable" we are now left with no alternative but to find help elsewhere
Auckland
We were overjoyed to learn that in 2010 the first attempt at IVF worked, little did we know that the journey we would be on over the next 6.5 years would be of horrendous heart ache and sadness.... Fast forward 25 weeks into the pregnancy and I went into labour. The specialist at Auckland Hospital managed to keep Brody tucked away for another week or so, but at 26 weeks and 3 days Brody decided he wanted to come into the world. 13 weeks early! Of course coming into the world this early caused a whole lot of issues for Brody physically and mentally. He is non-verbal and unable to walk (he scoots around on his knees)
From then on life totally changed. Brody has been through multiple surgeries, a week after he was born he was diagnosed with a rare disease called "Tuberous Sclerosis" which causes benign tumours to grow in the brain and a majority of the other organs - Brody has tubors on his brain, heart and kidneys.
Fast forward through multiple surgeries, bowel surgeries x2, reflux surgeries, hernia surgeries and then finally brain surgery for the suspected tubor that was causing the debiliatating seizures that took hold of his little body - we thought we were finally on a winning streak as we were seizure free for 6 days.....(Brody would have up to 50 seizures a day normally) how wrong were we, the seizures began to take a hold of him again. Fast forward to July 2017 and his condition was now declared “inoperable” We were also advised that pharmaceutically there is nothing else that they can do for Brody.
Our last attempt at providing a better quality of life for Brody is a specific strain of Medicinal Hemp Oil (which contains CBD and low THC (product is legal in Australia and USA) - We have contacts in Australia and USA have had great success with a specific type which we want to try. Failing that there is another option in NZ called Sativex which would then apply for (which we have been told will cost)
We recently spent over $180k on household modifications (we had to pretty much build a new house underneath an exisiting house as we couldn't take Brody up and down stairs as it was too unsafe) to make the house disable friendly (wet area bathroom, wider door frames, wheelchair ramp etc) and now funds are tight. With a monthly cost of near $800-$1000 (with cost to get product here from Overseas) we could really use your help!
If you could spare a few dollars for this (hopefully) liife changing medicine we would forever be grateful
Much Love
Anita & Shane
Brody is our pride and joy, our only child. I am his mum
To purchase Hemp oil from USA
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