We have had results not good it has spread to his brain but shows his spine hasn't growen except looks like a cis where he had biopsy we have 3 options to have radiation have a trial drug if we qualify for funding or do nothing me and the Dr told Stevie he still wants to fight this thank god so she Id putting us through forward for it
Stevie-Ray and his family would like to express their gratitude for the donations we have received so far it is overwhelming how much kindness and generosity people have towards our need for a van. Stevie-Ray has expressed how happy he is about getting that bit closer to our goal of the van which means he can get out and about with his family instead of having to stay behind with his mum or dad when things are needed for home. Again I would like to say thank you to everyone
Over the last week we have missed Physio and starship appointments as the taxi service havnt picked us up on pre-booked appointments 2 out of 5 appointments were kept last week due to taxi service not allocating us a van and today we waited two and half hours to be picked up to go home have found the service really disappointing especially since they were booked a week in advance and are unfortunately the only taxi service that are used by the ministry of health hoping we can get the funding for a van soon so we can rely on no one but ourselves
Stevie Ray and I are so greatful for the support we have received so far thank you all
