Gabriel battles Severe Refractory Seizure disorder which is slowly taking its toll on his body.
Auckland
If you have come across this page you have likely been linked through family and friends of Gabriel. This is his journey. 😊
Gabriel was born with Severe Refractory seizure disorder a type of Epilepsy that is hard to control under medication. This means that Gabriel has never had a seizureless day in his life. Recently Gabriel traveled to Melbourne Royal Children's Hospital in the hopes of being able to have surgery to remedy his condition. Unfortunately the size of the abnormality was much greater than anticipated. The initial size was that of a 50 cent piece and is now showing through scans the whole right side of his brain to be abnormal (huge difference to what we were first told) leaving the family to seek other avenues due to high risks. Gabriels mobility, sight and speech has been deteriorating the last 3 months and noticably his left side is becoming weaker at the moment. The basics of life for Gabez has completely changed going to the toilet assisted and not being able to feed himself or walk and talk are becoming more of a common occurrence. He has good days but the bad days are becoming more frequent and the constant battle over the 11 years battling the illness is taking its toll on his body. The key is quality of life. Letting Gabriel live and lead a normal as possible life until we find remedy and relief. Gabriel is a very strong and humble boy loved by many. It is always heartbreaking to watch him go through what he does but he has taught us to persevere and what strength truly is. Every little bit will help tremendously on Gabriel journey. We are grateful for everything but most of all Gabriels breath of life.
Xox. Love and light.
#TeamGabez
We are his family. We see it, we live it. We've been asked many times by others if they could create a givealittle page but pride always stopped us from letting it proceed. So here it is. Help us help Gabez.
Funds will be used to help the family keep up with ongoing costs to care for Gabriel.
Gabez Journey 28 August 2017
Gabez seizures have been at an all time high. He has many throughout the day but night seizures we've lost count. It is good to see him smile through it all. He'll be back to Starship Wednesday to see what paths we can take to find relief. The days now consist of naps so Gabez can get rest. He's nights are so full of seizures he hasn't been able to recoup to full health.
He caught cold a few days ago and with no energy to cough properly he hasn't been able to clear his chest. We're on it at present to ease his breathing. Lack of breath does not help and is triggering extra seizures so there coming in full force. Fingers crossed for a better next few days.
Thank you all for reading at taking the time to donate share love and leave kind messages. Grateful is an understatement. Blessings to you all.
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