Help us cope with my Genetic Condition

In October of 2016, I was diagnosed with a genetic condition called Ehlers-Danlos, a connective tissue disorder. Having this means I have very stretchy, thin skin that damages easily, wounds that take an abnormal amount of time to heal, and hypermobile joints with a susceptibility to dislocate.

I suffer from debilitating pain everywhere in my body, that manifests similarly to fibromyalgia, meaning there is little to no treatment or cure for this. I also have chronic problems with my wrists, resulting in needing to wear wrist braces when working or doing anything that risks dislocation, which really makes my dream of being a chef something hard to achieve.

Because of this, I have trouble working even part time, as Ehlers-Danlos impacts all aspects of my health and has compromised my immune system, meaning I am constantly unwell. It has also caused Postural Orthostatic Tachycardia Syndrome (POTS), which means when I sit or stand up and my heart rate increases (tachycardia), my blood pressure does not rise to compensate so I become light headed and risk falling unconscious. Another commonly associated condition is Mast Cell Activation Syndrome, which affects most systems of my body, from my skin, down to the bone similar to being slightly allergic to everything and having gastrointestinal problems.

Because of my inability to consistently work, my fiance Conor and I are struggling financially living in Central Auckland until we can move in February. I am asking please, that if you can spare anything to help us, it would be greatly appreciated so I can focus on trying to stay well before I go back to university. Any help we receive will go to medical costs (travel to and from my GP and my medications) , groceries, and other travel costs because I can't walk too far. This will help us compensate because I can't work enough to cover all of my own costs properly.