Helping fund Trexo Robotic Walker therapy & specialist rehabilitation support for Elyse, a 12yr old living with severe physical disability.
Waikato, Taupo District
Elyse was just 2½ years old when she was diagnosed with DIPG, a rare and aggressive brain tumour. Today, at 12 years old, she is still here — something that once felt impossible. While the tumour has left Elyse with severe physical disabilities, she is cognitively present, aware, and full of determination. Her body, however, struggles to respond to what her mind asks of it.
Over the years, Elyse’s family and community have worked tirelessly to support her health, comfort, and quality of life. Every gain matters. Every movement matters.
Following recent leg surgery, Elyse is completing physiotherapy as part of her recovery. This period is a critical window where consistent, intensive movement therapy can help protect and build on the progress she has made. Without the right support, there is a real risk that these hard-won gains could be lost.
The Trexo Robotic Walker is an advanced rehabilitation tool that guides the legs through precise, repeatable walking patterns, helping retrain the connection between the brain and body. For Elyse, access to the Trexo is not about miracles — it’s about strength, mobility, dignity, and independence.
With your support, we hope to fund Trexo therapy and specialist rehabilitation so Elyse can continue moving forward. Every donation, big or small, brings this life-changing therapy closer. If you’re unable to donate, sharing this page is just as meaningful.
Thank you for standing with Elyse.
I am Elyse’s mum’s close friend and have helped organise fundraising for Elyse since her diagnosis. Over the years, our community’s support has made an enormous difference to her quality of life.
Funds will go towards Trexo Robotic Walker therapy, specialist physiotherapy and clinical oversight, and associated costs needed to ensure Elyse can access ongoing, intensive rehabilitation.
Grateful Update 💛 19 March 2026
We wanted to share a special update on Elyse’s journey this week and say a huge thank you to everyone supporting her.
It’s been a big week of early starts (5am… and even a 4am wake-up 😅) and daily trips to Rotorua for intensive rehab at the Centre of Movement. Elyse has shown incredible strength and determination.
In just a short time, we’re already seeing breakthroughs. This week included multiple one-hour sessions focused on crawling, walking, sitting, and neuropathy work — and something amazing happened… Elyse sat independently all by herself 🙌🏻
This is especially meaningful as we were previously told this may not be possible due to the way her back is fused. The same was said about standing, yet she is now spending over an hour in the standing frame.
She’s also started treadmill walking (now day two), along with great progress in arm movement, tummy time, and sitting work. Her speech therapy session went really well too, and she now has lots of “homework” to continue building on these gains.
We are so proud of her. After such big days, she’s definitely earned those well-deserved sleeps on the way home 🏠
Thank you to everyone who has donated, shared, and supported Elyse. Your support is making moments like these possible 💛
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