Maximus was rushed to Christchurch to receive treatment for leukemia. This page is to help his Mum and Dad stay with him for the duration.
Wellington
Maximus (or Mussy as his family like to call him) is a fun, confident boy who loves the water, pirates, lego, dancing and his family. He has a gruff voice that you wouldn't expect to come out of a little boy, a cheekiness sense of humour and a strength that is more than most kids are born with. And he needs it.
Two years ago Maximus was diagnosed with Leukaemia (ALL). He was 3 years old. After 2 months of intense treatment in Christchurch, the cancer went into remission and he was allowed to go home to Wellington for the remaining two years of chemotherapy.
But in May this year, the doctors noticed something wrong. The cancer had come back. And once again, within a day, the whole family were back in Christchurch, and Maximus (now aged 5), has started 3 more years of intense chemotherapy, radiation, and possibly a stem cell transplant.
The chemotherapy this time is incredibly intense and the side effects profound. He is super brave, but this little boy needs his mum and dad on hand 24/7. Currently one parent stays with Maximus overnight at the hospital, while the other looks after Matthias (his 3 year old brother) at the Ronald McDonald House.
We are hoping to raise enough funds to allow both Mussy’s father Chris and mother Lisa stay together with him in Christchurch for the full 9 months. The funds raise will help cover their mortgage in Wellington and normal living costs while they are away from work. Anything you can give to help this amazing family would be a huge blessing!
The Mathews family is actively involved in the same church community as I am, and I would love to help this amazing family during this trying time.
Home 1 January 2017
Written 30/12/16
Flight NZ 429. We're on our way home! What a year it has been nevertheless it appears that 2016 has extended it's various hurdles, trials and challenges to most. May we all come out stronger for it.
Thank you to every single one of you who have helped relieve the pressure of our journey. It has been said before but we are so grateful and humbled.
Maximus is progressing well. We were told that he received "the mother load" of conditioning treatments however he got through the initial transplant better than most. "Above the curve" to quote his consultant again. Yes the days were extremely hard requiring morphine and the like however we soon found him rising from the depth of the bone marrow transplant and into the green zone sooner than expected.
Maximus was improving daily but Graft versus host disease then presented itself which he is still receiving treatment for. A silver lining to this is the Graft versus leukaemia effect which also takes place meaning a less chance of relapse.
Next week our Champion will have will have an operation to remove his Hickman line (a central venous catheter inserted in May) and this will be momentous as he'll be able to shower properly as the sight covering his chest must remain dry. He also plays so unreserved/ rough and I often find the boys wrestling so Mama's nerves of it being ripped out will thankfully be relieved too. It will be a day of freedom.
So here we are staring 2017 in the eye and looking back at what was. As Maximus immunity won't be fully functional for 12 months we'll have to do 2017 a little differently yet we see this as an adventure. Uncharted territory yes but an adventure for our family.
God bless and thank you all.
ps When we arrived home Maximus hugged our house.
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