Our Guiding Star🤍

Kia Ora Koutou, I’m Breaan, Islah-Maria’s Mum. I come here to ask for your help! My little girl has a skin condition, which is lifelong and currently incurable. Despite her resilience and achievements, I am committed to ensuring that my daughter enjoys the best possible quality of life. I am seeking your support and guidance to achieve this goal. Any advice, assistance, or contribution would be invaluable. Your help will make a tangible difference, and we are grateful for your support during this difficult time. ❤️

She holds a condition called (Recessive Dystrophic Epidermolysis Bullosa)

A severe genetic disorder causing fragile skin that blisters and wounds from minor trauma, leading to chronic scarring and complications like pseu donyndactyly, malnutrition, and an aggressive form of skin cancer (squamous cell carcinoma). It targets vital organs of the body including the oesophagus, mouth,, stomach, intestines, upper airway, & bladder.

Thank you for taking the time to read this, me and my little girl really appreciate it❤️