Help Ryan live a normal life

In 2002 Ryan was diagnosed with a rare and fatal blood disorder called Fanconi Anemia. In 2005 he had a bone marrow transplant which did not work and six months later he had a second bone marrow transplant which was successful, he has had a tough road with some very dark days but took these on and won the battle. Ryan will always need regular checkups and medical care to hopefully be able to lead a normal healthy life.

Fanconi anemia is an inherited disease that can lead to bone marrow failure and cancer. Though considered primarily a blood disease, FA may affect all systems of the body. It is a complex and chronic disorder that is psychologically demanding. FA is also a cancer-prone disease, affecting patients decades earlier than the general population.

There are 2 family conferences we would love to attend.

FA is rare there are under 10 people with this in New Zealand so its really important we try and attend these conferences to learn more about it, whats new and new treatments.