Help Simon fight his Cancer for his Kids

$170,651 of $250,000 goal
Given by 2271 generous donors in around 7 months

Please help Simon keep fighting to see his kids grow older, and for them to bank lots of memories with their loved Dad (and husband)!

Te Atatu Peninsula, Auckland

Hi, we are the Clark Whanau, Simon, Libby and our four kids Ethan (15), Jacob and Liam (5) and Eleanor (4). After becoming very sick Christmas 2021 we were shocked when Simon had a diagnosis of Multiple Myeloma. He started chemotherapy immediately and testing reveals he has a gene mutation which means his cancer is aggressive. 2022 saw him undergo chemo and not one but two gruelling bone marrow transplants 100 days apart. Simon is a fighter for his kids and did an amazing job tolerating the transplants.

Unfortunately in March 23 we received the news that the transplants were unsuccessful. He was put on more chemo (lenolidomide) which has done a good job keeping the cancer at bay.

In August, the bloods showed the myeloma is on the move again which means we need to move to unfunded drugs. Pomalidomide is our first stop and costs $700 a month. The next stop after that will be Daratumumab which will cost $220k for the first year. (Please see update from April 2024)

We have dropped to extremely limited income and mortgage payment increase and cost of basic living means we are reaching out in the hope that we may be able to raise some money to put towards treatments costs of these two drugs and some day to day expenses.

*update as of April 2024*

Our funds raised will now be going towards CarT therapy in China! Please see our update for more info!❤️❤️

Any donations are appreciated more than you know. Thank you for reading.

Use of funds

We set up this page specifically to pay for two drugs - pomalidomide and daratumumab and as at April 2024 we have spent $50k on those drugs. Simon is currently on a trial and will be until it ends or until he doesn’t respond to the drug – whichever comes first. After that, we will use the givealittle funds for CAR-T Treatment in China and from time to time, we may use funds if we’re short for day-to-day bills.

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Latest update

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Trials and Tribulations 1  10 April 2024

Cycle1, Day 2, Hour 20. Only another "day" to go. No side effects yet although the dose they gave me was really small and they'll step it up over the course of the next few weeks.

Only a few hundred on the trial world wide and a handful in NZ. If some things are vague it's on purpose. I'm not allowed to say anything that may identify myself to the trial sponsor as it's a blind trial so everything is anonymised - I'm just a number in a spreadsheet to them. Although given recent media articles, the disease I have, the number of trials (in the public domain too) and the fact I'm in nz doesn't make it too difficult to figure out. If anyone wants more info feel free to message directly.

Simon.

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Latest donations

Guest Donor
Guest Donor 7 hours ago
Spend it wisely
$1.10
Logan
Logan 23 hours ago
Best of luck from a fellow myeloma traveller.
$100
Simon and Libby Clark

Thank you Logan 💕 we hope you are doing ok on your journey too 💜

Simon and Libby Clark
Rebecca
Rebecca 1 day ago
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Simon and Libby Clark

Thank you Rebecca ❤️💕

Simon and Libby Clark
Guest Donor
Guest Donor 2 days ago
It’s not much. However I hope my contribution helps even bits. Stay strong, I am sure you’ve received a lot of love and support throughout. My thoughts with you and your family !
Private
Simon and Libby Clark

Thank you so much. Every amount is alot to us, you we thank you 💕

Simon and Libby Clark
Guest Donor
Guest Donor 4 days ago
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Simon and Libby Clark

Thanks heaps for helping us!

Simon and Libby Clark

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This page was created on 18 Sep 2023 and closes on 30 Apr 2025.