Please help Simon keep fighting to see his kids grow older, and for them to bank lots of memories with their loved Dad (and husband)!
Te Atatu Peninsula, Auckland
Hi, we are the Clark Whanau, Simon, Libby and our four kids Ethan (15), Jacob and Liam (5) and Eleanor (4). After becoming very sick Christmas 2021 we were shocked when Simon had a diagnosis of Multiple Myeloma. He started chemotherapy immediately and testing reveals he has a gene mutation which means his cancer is aggressive. 2022 saw him undergo chemo and not one but two gruelling bone marrow transplants 100 days apart. Simon is a fighter for his kids and did an amazing job tolerating the transplants.
Unfortunately in March 23 we received the news that the transplants were unsuccessful. He was put on more chemo (lenolidomide) which has done a good job keeping the cancer at bay.
In August, the bloods showed the myeloma is on the move again which means we need to move to unfunded drugs. Pomalidomide is our first stop and costs $700 a month. The next stop after that will be Daratumumab which will cost $220k for the first year. We are desperate for Simon to keep fighting and he wants to stay fighting to see his kids grow older. We fervently hope that at some stage Daratumumab will be funded by Pharmac but that isn't looking likely soon.
We have dropped to extremely limited income and mortgage payment increase and cost of basic living means we are reaching out in the hope that we may be able to raise some money to put towards treatments costs of these two drugs.
Any donations are appreciated more than you know. Thank you for reading.
All funds will be used for treatment costs for Simon's fight against this cancer.
(Pomalidomide and then Daratumumab)
Bye bye Pom 25 November 2023
So the Pomalidomide wasn't effective and the Dr has suggested it's not worth carrying on with it. Each blood result is showing an increase so it's time to roll the final dice.
With the money raised we can now at least start down the Daratumumab path. Initial consult with the private Haematologist next week. Looking forward to it and optimistic it's going to have a positive result.
Thank you so much!
Will do, thank you Michelle!
Thanks for helping Karla 🙏
Thank you Kirsty and Andrew 🙏