Help Simon fight his Cancer for his Kids

$175,527 of $300,000 goal
Given by 2298 generous donors in around 9 months

Please help Simon keep fighting to see his kids grow older, and for them to bank lots of memories with their loved Dad (and husband)!

Te Atatu Peninsula, Auckland

Hi, we are the Clark Whanau, Simon, Libby and our four kids Ethan (15), Jacob and Liam (5) and Eleanor (4). After becoming very sick Christmas 2021 we were shocked when Simon had a diagnosis of Multiple Myeloma. He started chemotherapy immediately and testing reveals he has a gene mutation which means his cancer is aggressive. 2022 saw him undergo chemo and not one but two gruelling bone marrow transplants 100 days apart. Simon is a fighter for his kids and did an amazing job tolerating the transplants.

Unfortunately in March 23 we received the news that the transplants were unsuccessful. He was put on more chemo (lenolidomide) which has done a good job keeping the cancer at bay.

In August, the bloods showed the myeloma is on the move again which means we need to move to unfunded drugs. Pomalidomide is our first stop and costs $700 a month. The next stop after that will be Daratumumab which will cost $220k for the first year. (Please see update from April 2024)

We have dropped to extremely limited income and mortgage payment increase and cost of basic living means we are reaching out in the hope that we may be able to raise some money to put towards treatments costs of these two drugs and some day to day expenses.

*update as of April 2024*

Our funds raised will now be going towards CarT therapy in China! Please see our update for more info!❤️❤️

Any donations are appreciated more than you know. Thank you for reading.

Use of funds

We set up this page specifically to pay for two drugs - pomalidomide and daratumumab and as at April 2024 we have spent $50k on those drugs. Simon is currently on a trial and will be until it ends or until he doesn’t respond to the drug – whichever comes first. After that, we will use the givealittle funds for CAR-T Treatment in China and from time to time, we may use funds if we’re short for day-to-day bills.

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Latest update

Still in the trenches!  6 June 2024

We are limping along here, Simon is still suffering some nasty side effects but ready to start cycle 3 next Tuesday - this will involve both drugs being administered for this cycle and onwards. He has lost ALOT of weight, and is trying to keep on top of hydration and protein drinks as eating is out the window between his mouth and lack of appetite. But he is battling on and will keep fighting.

Myself and kids are doing ok, it is a challenging time at the moment but we are well supported by family and friends and some meals being dropped which helps me immensely.

In a side note, I wrote in a previous post about our car crapping itself. We'd like to say a massive thank you to Mazda New Zealand and the team at John Andrew Ford and Mazda in Henderson who arranged for a brand new transmission to be shipped over from Japan, and put into our car. They generously covered the part cost and we were more than happy to take the cost of labour hit (well, not overjoyed but better than the alternative!) which was ALOT less than a new transmission. We are so grateful.

So thats us from here. Much love to you all and thank you for your continuing support.

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Latest donations

Barb
Barb 1 day ago
$50
Chris
Chris 2 days ago
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Natasha
Natasha 3 days ago
$20
Jessica
Jessica 3 days ago
$10
Guest Donor
Guest Donor 4 days ago
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Created by, and paying to a verified bank account of, Simon and Libby Clark
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This campaign started on 18 Sep 2023 and ends on 30 Apr 2025.