We are fundraising for our beautiful 8y/o daughter Summer who has been diagnosed with a fatal and untreatable disease called Batten Disease.
This is Our princess Summer. Late last year something went wrong Summer awoke with a squint and a eye that had turned outward after further investigation and many hospital visits later we were told that Summer had 97% chance of having a inoperable brain tumour. With further testing and multiple doctors it was revealed to be a terminal brain disease an extremely rear disease called Batten disease which is a rare and fatal degenerative disease of the nervous system, among its symptoms are vision loss, seizures, cognitive problems, learning impediments, poor coordination and balance, Eventually Summer will be blind, bedridden and unable to communicate. We’re Hoping to raise money to go towards Summers supplements and medicines,travel to and from appointments and anything that research turns up to help wherever it takes us along with making memories as a family that can be cherished.We are devastated with this news and will never stop or give up hope For our baby girl the search will never stop.
See our previous Givealittle page here: https://givealittle.co.nz/cause/help-summer-smile
Supplements, future medicines and travel to and from hospital stays and making many happy family memories with our baby girl
♥️ Thankyou Lauren
🙏🙏Thankyou so much Melissa