Back to page

Unite for My Burkitt Lymphoma Healing Journey

  • Returned to Aotearoa 🌻

      12 September 2024
    Main image

    Kia ora 🧡

    I’m still here, with you :) so far it’s best possible scenario and let it continue

    Sending blessings and appreciation to you for being when I needed you

    Now restarting life with extra organisation of doctors check ups etc

    For time being until further clarification I’ll be around auckland :)

    Got a car already so looking forward to catch up !

    Stay true and positive and let go what you can’t change 🧡

      0 comments  |  Login to leave a comment

  • Cancer free! 🔱

      7 June 2024
    Main image

    I was loosing trust.

    But I went to the void and came back, it wasn’t my time yet

    Let’s restart and grow 🌻 thank you for being part of it!

      0 comments  |  Login to leave a comment

  • Not all sunshine and rainbows

      27 May 2024
    Main image

    Hi everyone !

    Campaign reminded me that in two weeks they will close it so it’s probably last update

    What is new ??

    Treatment is finished and already im a month into recovering from chemo

    In two days I’ll have body scan to what I trust will be cancer free result diagnosis

    I try do my best but it’s exhausting.

    Hoping that my veins are recovering and those lumps are just temporary side effects but they are present on both hands during any form of activity, fortunately there is no extra sensations with them

    Last June I left for a short holidays and my savings are done

    I and my therapy need extra support, and if you are in position to buy me a “coffee or a lunch”

    Than please get in touch or/and share this message

    On positive side with all green lights I am to be back by October and so far in background I work on foundation for survivors as after treatment you literally have high five and good luck, with no further guidance on quality of life post-treatment.

    Arohanui 🙏

      0 comments  |  Login to leave a comment

  • No more!

      22 April 2024

    I finished treatment !

    # no more chemo

    I received a hug from oncology unit , high five and good luck..

    Still I’m staying under wings of doctors, medication and regular blood tests

    End of may I’ll have body scan to see results

    I feel spring in my life.

    I feel like my wings can spread

    Currently with baby steps I’m going through rehab on holistic level

    And working out my blind spots as I feel lost regarding new chapter

    Coaching, mentoring help is welcome!

    This year is full of challenges and embodied wisdom

    And if you need some support I’m here in service too !

    Regarding funds … they melt quickly so please if you can share fundraising in your circle that would be helpful!

    I need to avoid sun and forest bathing, and exotic bacteria for time being so I won’t be able to stop in Indonesia for recovery

    So I trust we see each other during winter in NZ 🙂

    And from there I trust more clarity will shine its light !

    Blessings🌻

      0 comments  |  Login to leave a comment

  • Cheering up :)

      22 March 2024
    Main image

    Exhausted but in good spirit , 5 is over

      0 comments  |  Login to leave a comment

  • Early birthday present

      10 March 2024
    Main image

    Yay! There is what to celebrate

    I received updated results from a PET scan

    Last one was in November, and it wasn’t very hopeful

    But now it looks like I’ll still be here to celebrate my 35 round around the sun and healing keep happening

    After the weekend I’m ready for a 5th week cycle to take another step towards wellness 🌻

      1 comment  |  Login to leave a comment

    • 10/03/2024 by Deb

      Kia Ora Mike.

      Thanks for the updates … missed our hugs and chats through the festive season … looking forward to you being back here one sweet day… all in good timing. You’re always in our hearts & souls through all time & space. Keep that soul song streaming through the stunning essence of you.

      Kia Kaha

      Aroha Nui

      Deb 💗🙏🌿🌈🥰🎶💐

  • Early birthday present 💜

      5 March 2024
    Main image

    Last body scan was in November, and now I got updated results

    It’s almost 10x better than before!

    Still minimum two rounds of chemo but it’s already march, 35 round around the sound behind the corner :)

    already I feel much better and can start to plan rehab by the ocean with a coconut drink under palms 🌻

    Thank you x

    Rise and shine 🔱

      0 comments  |  Login to leave a comment

  • 4th round!

      12 February 2024
    Main image

    Entering the final stretch of the fourth cycle!

    Time is flying, and I'm gaining experience.

    My vitality is also raising!

    Currently, I've been hooked up to Methotrexate for 23 hours.

    After this, I will be flushed for two more days to ensure it does its job without staying in the system.

    I'm waiting for the schedule of my next PET scan at the end of the month to see how the treatment has helped.

    And I feel that it is helping :)

    This journey is a lesson in humility, and I thank everyone for your presence!

      0 comments  |  Login to leave a comment

  • New Wings!

      24 January 2024
    Main image

    third cycle is finished, I'm resting at home,doing my rounds for blood test and waiting for my wings to spread

    haven't been much on screens, my eyes needed lots of rest so I stayed in darkness coccon

    Hopefuly this part is gone and can shine again :)

      0 comments  |  Login to leave a comment

  • Ready for 3rd round!

      12 January 2024
    Main image

    It ain’t perfect, but blood test results shows that I’m ready to jump into next phase of treatment -3rd cycle!

    I had my operation for more pernament port which makes live easier during treatment

    I became an Ironman, and got special passport for the airports as I’ll beep at the gates ;)

    Thank you for all kind words 🌻

    it’s 7 months without work and more are yet to come

    I invite you to share it further into the world because then everything together becomes easier :)

      0 comments  |  Login to leave a comment

  • 2024 gratitude

      3 January 2024
    Main image

    Today is another beautiful day.

    Happy to arrive in 2024, and I'm doing well 🌻.

    From this place, I thank you for every donation and comment; you are wonderful! 💚

    The second cycle of chemotherapy has ended. Hospital removed the central line from my neck, which was pressing on me so much that my head was tilted back, and I had to lie horizontally for two weeks.

    I've been detoxified from the chemotherapy through a every 6-hour flush cycles, and I've been discharged home.

    The next cycle will start in 10 days.

    Every discharge from the hospital involves expenses, so once again, thank you for helping us manage this, making survival easier.

      0 comments  |  Login to leave a comment

  • Round 2

      20 December 2023
    Main image

    5 days now , than plan is to let me go back for Christmas period and continue cycle from 27.12

      0 comments  |  Login to leave a comment

  • Weekly Morfology results!

      15 December 2023
    Main image

    Even if my healing journey currently is happening overseas, luckily test results speaks the same language :) here is an update!

    The beauty of organism regeneration when provided with the right resources! 😲

    This week, I visit hospital four times for a blood morphology check.

    My leukocyte count was at 1, significantly below the normal range

    but today it was 60!! 6x times to high

    However, we now understand the cause of those night sweats.

    On a positive note, my platelet count, which was initially at 20, has jumped into the correct range!

    In other words, upcoming Monday, I am ready to start second cycle of therapy!

      0 comments  |  Login to leave a comment

  • 12.12 Portal brings fresh air

      13 December 2023
    Main image

    Chemotherapy has started to take its toll, and I had to let go to my lush mane.

    The results of my blood platelets dropped very low, leading to frequent hospital visits.

    This is just the beginning of the dance; it's time to open up to human kindness and let go of additional stress.

    positive note is that my swollen lymph nodes on my neck became smaller!

      0 comments  |  Login to leave a comment