Hi My Name is Hui Te Pairi I Want to beat Cancer to be around for my 3 Babies and watch them grow old and be around family and friends....
Wellington
I'm looking for anyway I could get help I am 28 a mother of 3 and I am diagnosed with Ewing sarcoma cancer in the bone it all started from June 2014 I had injured my leg just sprained my knee but had a wicked pain in my hip knee and ankle. I got given gas, anti flam injection and pain killers and got sent home then in August 2014 The same happened again but this was worse felt like Contraction pains running up and down my leg I asked if I could have an x ray they gave me an x.ray Gas morphine Tremadol panadol I.bprofen etc they said my xray results came back clear I asked for an m.r.i coz I new It was in my bones coz of the pain but the Lower Hutt Hospital said no and sent me off after 8hrs with pain killers then I was back in the Emergency dept in sept with the same pain and pleaded for an m.r.i or ct scan but the nurse said I had to be screaming down the hospital to have those done which for 4hrs I was shaking in pain eyes rolling back felt like Contractions all I got was the same treatment Morphine, Gas, Trem, Panadol I.bprofen an injection and sent off with pain killers. Same happend Oct. Nov 2014 then to Jan2015 I got a cricket brace put on my leg same treatment no answers I was back in the hospital the next night even worse the nurses were rude they were tearing my brace off like they were angry. and Feb2015 I had enough Paid $80 to After hours and cried to the Dr my story. he said he could help but I would have to pay Pacific Radiology $101 for xrays and 300 for an M.R.I as he is Just goi g by my word My first appt was xrays and they found something in my leg but wasnt sure next appt was M.R.I and thats when they found a tumour in my hip not sure what sort of tumour it is. In March-April I had a Biopsy done and found out I had Ewing sarcoma my Hip bone is shattered like an eggshell and the only thing that is keeping my hip together is my Tumour I got told Id be either bound to a wheelchair or bound to crutches, really it goes with what's in your head if you think you can walk then walk homie if you think your sick then that's what your get I know im sick but I have a strong mind and heart and nothing can stop me unless I die from this disease I have been notified that they dont know if its curable and no Operation appts have been made By the way I was a fulltime worker Building/Painter and a Mum so thats 2Jobs it took me till May to get winz to help me as I was using my savings to pay for rent, Power, Food, Childcare. Taxi's from & to my hospital appt atm I was on cruthes and I have to get on 2 buses to get to the hospital and takes 45mins my appt were morning appt 9-10am so I didnt have time to drop my kids off to school then catch 2 buses where a taxi takes 10mins I have tried to apply for the Disability Allowance but they want this paper that paper so on and so on. I have to go to 3 Diffrent Hospital's here in wgtn and many diffrent other places for tests I have been let down so many times by the DHB getting told I can get transport which I get calls the day of my appt saying I won't be getting picked up which they let me down and I let my Dr's down by not turning up I have to be back before 3pm to pick my Babies up from school the struggle is real all I am asking for is where can I find help with my Babies to help do Pick ups and How Do I get help with transport to and from appts I have been cooking from home and selling meals to get money for bills and transport but it is more hard work then the Job I use to have and I'm tierd my timetable is Up at 6:00am get breakfast prepared shower & feed kids send them off to school clean go to appts get home clean up prep dinner, cook meals for customers shower dress feed my babies clean house and do kids school lunches for the next day by bed by 11-12pm please any help would be most appreciated.
(I am a positive minded wahine and I didnt want this to get out but since I have family like to tell everybody miles well do it myself and let the nation know)
I cant get extra help from WINZ as I need to pay for my own Medication which is way over my budget pay for transport as I have to walk 10mins to a train station catch train for 30mins walk and catch a bus and this is with a weeks worth of luggage now for a woman its alot I pay for gas to get someone to bring my angels to visit me as I cant live without them I only have my Partner for my support as my Dad lives in Australia and My Mum lives in Gisborne and my siblings visit once a blue moon I dont have a car and this is what I would love my money to go towards because I could get my partner to pick my babies up for visits I have worked all my life and believe me if I could work I would so I wouldnt have to struggle like I have been for the last 7months....
Godbless, Prayers and donations will be most appreciated!!!
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