Hey all!! Just another update to include that my cancer is indeed terminal, and have been given an estimated 6 months to 1 year. For now I’m focusing on having fun with my loved ones!
Thank you all so so much for the support so far, it really means the world
Hey there! Another health update, after recently speaking to my neurologist about the results of the biopsy of the tumor causing the compression I have been diagnosed with a rare sarcoma (MPNST). We are awaiting a pet scan and from there discussions of treatment options, so I am going home from hospital and no longer going to spinal rehab as of right now.
It’s been a while! Thank you so much for all the support so far! Unfortunately I don’t have a great update.
As of about a month ago, I am now an incomplete paraplegic. Late February out of nowhere i started having trouble walking, it started out as a limp and then within about a week I had become paralysed and completely unable to walk and lost all bladder and bowel function . Initially they couldnt find anything and I was about to be diagnosed with motor neurone disease when the CT myleogram showed a compression that wasn’t showing up on MRI because of my spinal rods causing artifacting. So now I have a..very very long road ahead. Thankfully this means getting a wheelchair will be easier though I’m unsure if the motor will be funded. From now the money will primarily be going to supporting my boyfriend and I as he travels here to be my primary caretaker and also with moving costs and a service dog, as our current home may not be accessible enough for me once I can get home from spinal rehab. Thank you so much for the continued support!
