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I am 8mths old & have epilepsy

$110 of $4,500 goal
Given by 4 generous donors in around 4 months

To help me get the special equipment I need to monitor & alert mummy of my seizures.

Waikato

I was a very happy, giggly, bubbly, full of life, 8mth old girl up until 1 very early morning in July. I was very blue, eyes rolling back, shaking, foaming at my mouth & I became unconscious & unresponsive.

I was rushed to hospital in an ambulance, where I stayed for the next month. I had numerous tests, lumber punctures, MRIs & was diagnosed with "idiopathic epilepsy" consisting with Tonic-clonic & Atonic seizures. My seizures are random & it is unknown what causes them or triggers them. Ive had seizures when im eating, playing, having cuddles & in my sleep.

There is some special equipment that will monitor & record my seizures & heartrate & it will send an alarm to mummy on a device so she can help me. I cant tell her when im not feeling well so these special equipments will do that for me. They can only be purchased from Australia & UK. Mummy fears going to sleep as she may miss 1 of my seizures. So I need her to rest too, & with this equipment she will be able to. She has been 24/7 by my side, too scared to let me out of her sight.

Eternity Aria's involvement (page creator)

Is my mummy & fears going to sleep as I may have 1 of my Tonic-clonic seizures. I need her to know that she can rest if I have the equipment I need to monitor me whilst I sleep.

Use of funds

The funds raised will be to buy me a monitoring seizure matt with alerts for when im sleeping, a bracelet to detect my heartrate & seizures before they happen, & for other specialist equipment that I will require as I grow.

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Latest donations

Guest Donor
Guest Donor on 22 Sep 2019
$40
Eternity Aria

Thank you for your kind donation 😊

Eternity Aria
Guest Donor
Guest Donor on 24 Aug 2019
Private
Eternity Aria

Thank you for your kind donation 😊

Eternity Aria
Guest Donor
Guest Donor on 24 Aug 2019
Private
Eternity Aria

Thank you for your kind donation 😊

Eternity Aria
Private Donor
Private Donor on 24 Aug 2019
Private
Eternity Aria

Thank you for your kind donation 😊

Eternity Aria

Who's involved?

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Created by Eternity Aria
helena bendall's avatar
Paying to a verified bank account of helena bendall on behalf of Eternity Aria
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This campaign started on 24 Aug 2019 and ended on 22 Dec 2019.