Sending a Health S.O.S.. I’m not ready to give up yet Famz!!

I was diagnosed with Systemic Lupus Erythematosus at the age of 16. Lupus is an autoimmune disease, meaning that the good cells are attacking each other which can affect the main organs in your body. My kidneys were affected and through that, I started getting several other illnesses incl. calciphilaxes.

After much research, I found that Sodium Thiosulphate and Hyperbaric Oxygen Therapy are used for calciphylaxis overseas.

I was placed on the waiting list for North Shore Oxygen chamber & while waiting for my name to reach the top of the list, I did 10 sessions of oxygen therapy privately with a company called BioTrace. I found that my wound was being contained and healing. I completed another 10 sessions and found that the wound was getting smaller.

Since then, North Shore hospital has taken my name off the waiting list and rejected my Renal Specialist's request to add my name back on the waiting list. It's been three months since my last oxygen therapy and my wound is getting bigger and it will get worse because the hospital can't do anything to help me. The oxygen therapy really helped me & I will need to continue with this treatment until it heals completely.

To do this privately it cost me $1,190 for 10 sessions.

I do 3 sessions a week so that’s why I’ve started this page - coz I can’t afford the cost of treatment anymore and I still need it.

Calciphylaxis can lead to death if not treated.. BUT Im not throwing in the towel yet! Anything will be appreciated 🙏🏽❤️