Mochi's Journey
2 March 2019
I hope I can convey this into words...
Our daughter has been diagnosed with a terminal neurodegenerative disease. Her brain is slowly wasting away and her body is forgetting to function.
Mochi, you've only been with us 10 months so far.
I remember seeing you for the first time in that hospital room.
I was clutching my head in disbelief that there was an actual baby.
Half me, half mommy! You were so cute.
We had to stay in the hospital for nearly a month.
I had a song for you every time I had to leave you in the hospital to go to work.
You've taught us so many things.
You've taught us the value of family.
You've taught us to never take a day for granted.
You've taught us to always be grateful.
You've taught us patience.
You've taught us the meaning of unconditional love.
Through you, we learned that people are kind, and that help is always there for those who ask for it.
We just want to thank you for giving us the chance to be your parents, even if it's just for a little while. It just hurts us so much to think that we may never see a future where we'll see you play, make friends, go to school, talk to you about teenage problems, or see you get married and have children of your own.
We can't help but think that if we loved you a little bit more things could be different now. Even though the doctor said this would have happened to you either way, we still wonder.
It's been a very long journey and we've done everything we could.
We are still hoping for a miracle, but looking back at everything, you are and always have been our little miracle.
We don't want you to be in pain anymore. We just want to enjoy you a little bit longer, if you will allow us to be a little selfish.
We love you so much Mochi!
