Isla Willow's Journey - Neurodegenerative Disease.

$7,114 donated

Given by 128 generous donors in around 7 months

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Mochi has now passed away. Thank you for all your help.

Wellington

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Hi everyone!

My name is Isla Willow Pangan, but everyone calls me Mochi.

I was born on 02 May 2018.

After I was born, I stayed in hospital for 4 weeks with a feeding tube.

My mum and dad were very exited to meet me since I was their first baby! They didn't expect things to go really bad. They feel very sad that they can't help me ease my pain, even if they're doing everything they can. My mum keeps crying all the time, and my entire family was heartbroken when the doctor told them something was wrong.

The doctor had a look at my brain and he said that it was slowly going away.

I'm not in pain anymore but I have been a little tired and sleepy a lot.

Mum and dad say I sometimes forget to breathe when I'm asleep.

I said goodbye to mum and dad on 27 April 2019.

Mum and dad would like to thank everyone who helped us, especially dad's friends at Engineering New Zealand. They kept telling me that I had a lot of godparents!

Even if it was just a kind word, or a silent prayer, they are very grateful for all the support.

Thanks again for helping my family! I will miss you all!

Love, Mochi.

https://www.instagram.com/isla_willow_mochi/

Francis Pangan's involvement (page creator)

Mochi has now passed away. Thank you for all your help.

Use of funds

Funds raised will go towards treatment of Isla's CP - associated medical costs, transport, wheelchair, therapy, car seat, equipment for children with CP, and possible surgery to relieve tightness of muscles.

Mochi's Journey 2 March 2019

I hope I can convey this into words...

Our daughter has been diagnosed with a terminal neurodegenerative disease. Her brain is slowly wasting away and her body is forgetting to function.

Mochi, you've only been with us 10 months so far.

I remember seeing you for the first time in that hospital room.

I was clutching my head in disbelief that there was an actual baby.

Half me, half mommy! You were so cute.

We had to stay in the hospital for nearly a month.

I had a song for you every time I had to leave you in the hospital to go to work.

You've taught us so many things.

You've taught us the value of family.

You've taught us to never take a day for granted.

You've taught us to always be grateful.

You've taught us patience.

You've taught us the meaning of unconditional love.

Through you, we learned that people are kind, and that help is always there for those who ask for it.

We just want to thank you for giving us the chance to be your parents, even if it's just for a little while. It just hurts us so much to think that we may never see a future where we'll see you play, make friends, go to school, talk to you about teenage problems, or see you get married and have children of your own.

We can't help but think that if we loved you a little bit more things could be different now. Even though the doctor said this would have happened to you either way, we still wonder.

It's been a very long journey and we've done everything we could.

We are still hoping for a miracle, but looking back at everything, you are and always have been our little miracle.

We don't want you to be in pain anymore. We just want to enjoy you a little bit longer, if you will allow us to be a little selfish.

We love you so much Mochi!

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Guest Donor on 25 Apr 2019

My sincere prayers for you Mochi. I just saw the video of Mochi’s 1st birthday since a friend of mine has been tagged on it. Can’t help my tears stream down my face, I just can’t imagine the pain you guys been going through. My thoughts and prayers are with you.

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