Kahn Taylor - WOLFRAM SYNDROME Sufferer

Have you heard of Wolfram Syndrome?

This is it in a nutshell...

Wolfram syndrome is a condition that affects many of the body's systems.

Almost all Wolfram Syndrome sufferers will live with Diabetes (brought on around age 6) and progressive vision loss due to degeneration of the nerves in the eyes. Causing indefinite blindness.

People with Wolfram syndrome often also have pituitary gland dysfunction that results in the excretion of excessive amounts of urine (uncontrollable bladder), hearing loss caused by changes in the inner ear (causing deafness), urinary tract problems, reduced amounts of the sex hormone testosterone in males (hypogonadism), or neurological or psychiatric disorders.

Facts:

- About 65 percent of people with Wolfram syndrome have sensorineural deafness that can range in severity from deafness beginning at birth to mild hearing loss beginning in adolescence that worsens over time

- Sixty to 90 percent of people with Wolfram syndrome have a urinary tract problem

- About 60 percent of people with Wolfram syndrome develop a neurological or psychiatric disorder, most commonly problems with balance and coordination (ataxia), typically beginning in early adulthood

- Wolfram syndrome is often fatal by mid-adulthood due to complications from the many features of the condition, such as health problems related to diabetes mellitus or neurological problems.