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Keep Bella Breathing - Trikafta, the Cystic Fibrosis (CF) Non -Funded 'Miracle Drug' cost $470k per year!!

Rosemary
on 2 Feb 2021

Rosemary asks

Hi Sarah, I saw Bella on TV recently on the advertisement for Paddy Gowers Program and was thrilled that she looked so much better than previously, now that she is on the second round of this drug are you taking donations for the next round and if so how much more do we need to get it for her. Thanks Rosemary

This question has not been answered yet.

Ian
on 11 Dec 2020

Ian asks

Hi Sarah, hope you're keeping well 😊 how is Bella doing ?

Sarah

Kia ora Ian,

Thanks for your message. Bella is responding really well to Trikafta. She is living her full life as a 17 year old girl :-) She is still closely monitored, but so far this drug has really made the difference for her. Thankyou for your support! Our family wishes you a happy holiday season.

Sarah Macdonald
Faith
on 6 Aug 2020

Faith asks

Hi there Sarah

My name is Faith McMah first off I would just like to say how amazing is it that Bella has got so much support in the last 2 days on her give a little and so amazing bringing the awareness to CF :-)

Reason for my message is that 7 months ago I started a give a little for my nephew who has CF and is in a bad state we are upto $13k in 7 months and in the time he has gone down hill so much so my question is if you have any advice on how to get his page out there like Bella’s as we think Izaeah will not live to see his next birthday without the medication :-( so any pointers would be grateful please :-)

Sarah

Kia ora Faith.

I'm so so sorry. I had missed your question! I have just been revising the page now and seen this.

I will send you an email.

Hugs

Sarah

Sarah Macdonald

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