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Keep Bella Breathing - Trikafta, the Cystic Fibrosis (CF) Non -Funded 'Miracle Drug' cost $470k per year!!

Publicly fund Trikafta medication for people in New Zealand with Cystic Fibrosis

  7 August 2020
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Please consider signing this petition in support of the Cystic Fibrosis (CF) community here in Aotearoa/New Zealand.

https://www.parliament.nz/en/pb/petitions/document/PET_99952/petition-of-carmen-shanks-publicly-fund-trikafta-medication

To be able to get this drug funded we need to advocate at all levels and from all angles. Bella and others from the CF community have been in the media light, check the links on this page and @trikaftaforkiwis , the public can now see first hand why we need the people in power to come on side.

We are overwhelmed as a family, and so grateful for all your support for Bella.

We will be supporting this kaupapa as well as the wider kaupapa of increasing medical funding in New Zealand!

  2 comments  |  Login to leave a comment
  • 09/08/2020 by Ian

    Done 😊

  • 09/08/2020 by Madeleine

    Done, this absolutely should be funded. I am willing to keep donating whenever I can to ensure those suffering CF get access to this amazing drug. ❤️

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