Message from Alley ( Bella's Mum )
11 October 2020
Today we say thank you to the generosity of so many friends family and complete strangers. Today my girl started her second three months of Trikafta made possible by all of you. We have been working on a documentary that will air later in the month that will show life with and without Trikafta. It has been hugely emotional but we hope will continue to keep Trikafta and all other life saving medications front and centre of those who make the decisions of who lives and who dies in this country.
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We hope your are doing well and wish you every success and good health for the years to come.
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Dear Alley,
I am happy that your wonderful daughter can start her Trikafta medication; and I wish her well. I have seen Bella often at Kristin and was amazed about her kindness. She well deserves the support she receives.
As Sarah wrote, cystic fibrosis is destroying Bella's lungs and she needs a lung transplant -- my question is, why was/is Bella not wearing a mask at school (not even after Auckland went from level 3 to level 2.5)? Wouldn't wearing a mask protect her further? I would be grateful for your answer.
All the best for Bella and your family,
Marianne