The cystic fibrosis medicine that costs nearly $500,000 a year - and the global red tape that's strangling it
2 February 2021As the fight for funding TRIKAFTA continues so does Bell's story. Bella has had a summer full of fun, family and friends. If it weren't for all the wonderful people who have supported this page and given money, Bella's summer would have looked quite different! Until Trikafta is funded, she still need's all the support she can get.
We as a family are forever grateful to Paddy Gower and the power of his investigative journalism, he continues to push to reveal the TRUE story behind why drugs like Trikafta are so hard to fund here in Aotearoa.
Patrick Gower and Newshub will be running a three-story series speaking to New Zealanders with cystic fibrosis who have been able to privately access Trikafta.
Trikafta is a breakthrough treatment widely heralded as having the potential to turn cystic fibrosis from a life-threatening condition, to a manageable condition. It's currently not funded in New Zealand.
You can watch the interviews on Newshub Live at 6pm on Three, from Tuesday (2nd Feb) to Thursday. Patrick will also be on The Project on Tuesday to discuss it.
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Keep the faith Bella, so lovely to see you looking so well x