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Koha and Love for Tim on His End of Life Journey

  • Awesome news!!

      23 April 2025
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    Sorry I haven't updated lately but we were waiting for the results of Tim's latest MRI scan. The new is overwhelmingly good. All the spots in his brain have gone except for one on the area where Tim had his operation. The doctor said this is one of the rarest cases he has seen in terms of a cure. He thinks it was the B Raff drugs that your wonderful donations helped us fund that have done the job. They will give Tim a scan every couple of months just to keep an eye on him and have reduced all his drugs so he can get back to a normal life.

    Our whole whanau are soooo thankful to you all for your kind thoughts and donations.

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    • 23/04/2025 by Debz Tongotea

      That's fantastic news, we are very grateful for the update and pleased beyond measure for Tim, for you all.

      Ofa lahi atu, tino arohanui Debz and Mafua Tongotea

  • New Way Forward

      17 March 2025

    Yes we have changed the end date as we have a new way forward for Tim as per our last update. Will let you all know how we get on.

    Lots of love to you all and thanks - Tim and Cassandra

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    • 23/04/2025 by c

      Fantastic news, God bless you Tim, I hope you know how truly loved you are ❤️ ❤️

      Arohanui xx

  • Second Chance

      11 March 2025

    Today Tim and I went to Bowen Hospital in Wellington to discuss a new treatment with his first melanoma specialist - Katherine Barrow. The very encouraging news is that she is prepared to give Tim a new round of drugs that have had fantastic results in brain melanoma in Australia. We will have to go private for it all - but thanks to your generous donations we have the initial money for all the consultations and a scan to help us decide the way forward. She thought Tim was quite well enough to handle the treatment so we are very positive for the future. For those that are interested here is the Australian youtube clip about the drugs. https://www.youtube.com/watch?v=OFRAswSWYf0

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    • 12/03/2025 by Liz

      Hi dears Tim and Cass

      This is fantastic news!! Thank you so much for sharing it & the video. Go Tim!

      Much love from us both, Liz and Tau

  • Update on Tim

      27 January 2025
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    Tim is quite well at the moment. He gets very tired but is able to do day to day tasks and the hospice is visiting once a month.

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  • Hanging In There

      13 January 2025
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    Just a little update re - Tim. The doctor has adjusted all his medication (thank you Hospice) and Tim is doing much better than expected right now. We went away for a little adventure to the Wairarapa for three days. Making the most of each days.

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    • 13/01/2025 by Liz

      Lovely Cass.

      Much love to you both and your whanau.

      If it suits when the time comes we can come up to see Tim this coming Saturday but if that will tire him too much before your big drive up to Pauanui we'll come after you get back. We're very flexible - the main thing is that a visit from us works well for Tim so please don't hesitate to suggest what would be best, Liz (Cell: 0272303312)

    • 13/01/2025 by Debz Tongotea

      Thankyou for the updates 😊 It's great to hear about the adventure you've been on and that the adjustment in meds was a good one. Thinking of you Tim and sending all those positive vibes out for you. Blessings and aroha to you and your whānau, much love Debz and Mafua ✨️✌️💕

  • Making the Most

      10 December 2024
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    We are making the most of every day. Tim is well and on steroids which last a few months and under Hospice now

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    • 11/12/2024 by Liz

      Hi dear Tim and Cass

      So sorry you haven't heard from us for a time - we were away overseas, mostly in Europe, for a month (Tau co-presenting at a conference in Bern) but back now and I was just about to contact you when I saw this update.

      It looks as if you're in a beautiful place by the sea - so great you bought that caravan.

      We'd love to come and see you when that suits - if you are home in the week or two after New Year and there's a day that looks as if it might work, let us know. We totally get that if we settle on what looks to be a good day, the best thing would still be to check with you early that morning to make sure Tim feels up to a visit that day.

      Sending our love and support, Liz and Tau xx

  • GOOD BUT NOT SO GOOD

      4 November 2024
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    Hi everyone. Just an update to say that the B Raff tablets have not worked so Tim has stopped taking them and is now under the Hospice for palliative care. He is now on steroids and is feeling good at the moment. We have done a couple of trips with the caravan and will take each day as it comes. Thank you all for your kind donations and messages. Aroha from Tim and whanau.

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  • Happy Birthday Tim

      3 October 2024
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    Tim had his 70th birthday on the 18th September. Many family and friends attended and we had a great evening of shared memories and love.

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    • 03/10/2024 by Liz

      That’s so lovely! Arohanui Tau and Liz 💚

  • Awesome Retirement Farewell

      30 August 2024
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    We had a wonderful day for Tim on Wednesday- his retirement farewell. So much aroha and lovely memories and tributes from many that have known Tim through his working life. Especially from his staff and friends and family. Thank you everyone.

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  • Medical Emergency

      27 August 2024
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    Tim had a medical event while we were at Pauanui and ended up in Waikato Hospital. He is back home now and slowly recovering.

    We really appreciate all your kind words and donations. Can we ask that you share this link on your facebook pages to keep everyone in the loop. Regards Tim, Cass and family.

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  • Away - Joining Thelma to Celebrate Her 99th Birthday

      18 August 2024
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    What a wonderful weekend for Tim. We drove to Pauanui to celebrate his mums 99th birthday. All Thelmas children were there and it was a very special time.

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    • 19/08/2024 by Liz

      How wonderful! Much love xx

  • The Next Step

      8 August 2024
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    Thanks to your wonderful and generous donations Tim has received and started on his new drugs. We hope the side effects are not too much and he gets a little more time on them.

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  • Feeling Good

      5 August 2024

    Firstly thank you so so much to everyone that has donated to Tim. We appreciate this so much. The money donated is enough to pay for one months drugs which are 5.5K a month.

    Tim is feeling good at the moment as they have given him some drugs to decrease the swelling in the tumours in his brain. We are starting on the new drugs this week and will keep you up dated.

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    • 05/08/2024 by Liz

      Thank you so much for the update Cass - so appreciate hearing how Tim is right now and what the next steps are. Much love.

    • 09/08/2024 by Liz

      💚💚