Last chance to sea

At age 5 I was diagnosed with Duchenne muscular dystrophy (DMD) an incurable muscle wasting condition. My original life expectancy was about 16. All my muscles are getting progressively weaker so I use a wheelchair to get around and I also need to use a Bi-pap to help me breathe.

Next February by turning 33 I will essentially double my original life expectancy thanks to my great medical care. I'm planning to go on a world cruise to celebrate my birthday, visit family and show others with DMD that travel is possible. This is a 115-day cruise that will visit many places I would never get to see otherwise like Iceland and easter island. A cruise is one of the only ways for me to travel because I can't sit in an ordinary plane seat and my wheelchair can't be used onboard the plane.

I have been on a waitlist for an accessible cabin and finally have one after a cancellation. Since I have been waiting for two years some costs have increased so I made this page because I would like to avoid cancelling if possible. The funds will go towards the purchase of a hospital-type bed, Wi-Fi onboard and trip insurance.

This is a once-in-a-lifetime opportunity for me because this is a return trip from Auckland that is only available in 2025. Any donation will be greatly appreciated and will help make my dream happen.

More info about dmd: https://www.parentprojectmd.org/about-duchenne/what-is-duchenne/