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Lauren's MS Treatment - Reprogram Her Life

  • Why we need your donations      24 June 2020
    Posted by: Lynn Yeaman

    🎉🎉our total is climbing and it is amazing people are donating at this hard time 🤩 we would like to say how much we appreciate every donation 💜 and we will reach our goal🎉🎉🎉 thankyou to everyone please if you can donate and share this page 🤩💜.

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  • Why we need your donations      29 May 2020
    Posted by: Lynn Yeaman

    So this year I have been battling with many health issues. I refuse to let it get in the way of my work too much but man it makes every shift so difficult.

    At the moment I am battling sinus issues which cause sleep apnea meaning I'm lucky if i get 4 hours sleep a night. This does not help my ongoing battle with fatigue at all. I am also battling with arthritis in my hands and knees. I have loss of strength in my right hand and arm and recently the vision in my right eye has went blurry.

    One of the most difficult symptoms to deal with and talk about is my difficulty going to the bathroom. I have to take medication to do this basic task. This symptom truly makes me full utterly useless. I cant even do a basic bodily function and I am only 27 years old.

    What makes all of this worse is the failure of the health system to provide me basic care. Every department palms me off to another and it is a constant battle between the other departments blaming my MS and my neurology team saying it is not the MS. I have now decided to only go to appointments that are necessary such as my infusion and drug review.

    I am currently at breaking point. I don't know what to do anymore. The saddest thing is I have begun to look into legal euthanasia. I cannot imagine going through all of this for another 50 plus years.

    I am torn between making a decision to enjoy a really good few years and end in a good place. The alternative seems to be suffer for 50 plus years.

    At the moment with covid my fundraising has stalled and I am really doubting I will be able to meet this goal and get the treatment.

    This is really difficult for me to open up like this but I want to be real with you all. Every single moment of my life is a battle either extreme pain, cramps/spasms, vision problems, breathing problems, loss of feeling/ strength, unbearable fatigue and extreme depression.

    Hopefully sharing helps. Thank you all for your support it really is appreciated.

    This side of MS isn't shown often and I'm glad I can finally begin to make people understand what it's like to have a silent and slowly debilitating illness.

    Please help donate and share thankyou 💜

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  • Medicine Drawer      21 April 2020
    Posted by: Lynn Yeaman
    Main image

    Hey I hope you are all staying safe! I have been able to work so have kept my sanity that way and also doing continual professional development. My current project is rabbit clinics so right up my alley! This actually brings me to today's post.

    I was looking for a notebook for my course notes when I stumbled upon my "drug drawer" which I know most people have. Upon looking at it I thought I should sort it out.

    From the pictures below you can see just how much medication was in there. They are a combination of current medication and past medication I have been on.

    It was crazy to see it in front of me in this way. Before being diagnosed with multiple sclerosis I could barely swallow one tablet. Now i take 30 tablets a day as part of my regular medication and varying other amounts of medication to also help control other conditions or symptoms.

    I almost cried looking at this. I worry I will never live a day again in my life where i do not have to take medication daily. I dream about the days before all this where i woke up and went about my day without alarms on my phone reminding me to take more tablets. I remember how this morning the thought of swallowing 9 tablets was making me feel physically sick.

    Can you help me try to regain a life where this may never be reality again?

    By donating just a few dollars you will be helping me on my way to a life which reflects a 27 year old rather than that of a pensioners. You could be one of my heroes.

    Thank you and stay safe 💜

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  • On the Frontline      12 April 2020
    Posted by: Lynn Yeaman
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    I haven't posted for a while because I have had a terrible sinus infection and just went back to work. I am now working 11+ hour days in a gown and mask.

    This is where I want to highlight that it is important to be kind at these times. I know it's hard for everyone so please remember this at all times. Imagine wearing a mask for 11 hours doing housework, gardening, exerting yourself etc. Well I can tell you it is hard!

    For me it causes me to overheat which in turn with multiple sclerosis causes my symptoms to worsen. So why would I do it when in reality I don't have to?

    I do it because my work is my lifes passion. I want to be there to support my team and provide your pet with the care I would expect my own to receive. I also want to support the community by being there to provide affordable care. Imagine if for the whole of level 4 your only option was to go to an after hours clinic?

    Well I can tell you many animals would go untreated due to the financial strain. I would not wish this situation on any owner or animal.

    So please be kind to your vets and vet nurses. Yes things will take longer and communication may be more difficult but the steps we are taking are what we legally need to do.

    Be kind at all times through this extremely difficult period of time. We will get through it together but divided we will fall.

    As you can imagine fundraising at the moment had been put on hold. I am looking at ways to try and get back on track.

    One way you could help to support me and my journey is by donating just a few dollars. Imagine not even as much as that coffee you would have had today?

    If everyone who saw this post donated it would make an enormous difference.

    #StayHomeStaySafe #MultipleSclerosis #BeKind

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  • Online Sales     26 March 2020
    Posted by: Lynn Yeaman

    We have been donated items to sell online with the profits going to the fund. We managed to sell a couch just before the lock down. During this time anything we get is a god send.

    Thank you 😊💜

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  • Money Raised     14 March 2020
    Posted by: Lynn Yeaman
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    This weeks Pop Up shop and some private donations have raised $380!

    Thank you all for your support 💜😊

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  • Today's facebook post was a hit!     2 March 2020
    Posted by: Lynn Yeaman
    Main image

    Below is today's post from my fundraising Facebook page. I love having the opportunity to make a difference for many others while trying to help myself. It has really spurred me in as I have been finding it difficult to ask for help so far.

    Thank you all you have been so amazing 💜

    ************

    I have decided to use this platform to also highlight difficulties and certain conditions affecting not only people with Multiple Sclerosis.

    Today's topic is: 80% of Disabilities are not visible 🧐

    I have a disability parking permit. I have been stared at and even abused by people for using the parking spaces even though I have a permit!

    I have spoken to a few people who have a permit (which you need to pay for) and do not use it due to abuse and people starting at them.

    Please be considerate! I am all for outing people who use these spaces without permits but try not to make people who do uncomfortable.

    In my case an elderly man blocked me in my space to abuse me. He said he needed the space more than me and that I was young and there was nothing wrong with me. All this inspite of me showing him my badge.

    So please keep on mind that 80% of disabilities are invisible to the naked eye.

    Respect and support your peers!

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  • Infusion Day 💉😞     1 March 2020
    Posted by: Lynn Yeaman
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    Today was my infusion day. It lowered my blood pressure and made me unable to work. This isn't always the case normally I go to work straight after.

    I have to get an infusion of a drug called Tysabri every 5 to 6 weeks to stop my immune system reaching my brain and spinal cord. This is because my immune system attacks the healthy insulating tissue of my nerves which is what Multiple Sclerosis (MS) is. Multiple Sclerosis means multiple scars. The process of getting this treatment involves a 2 hour stay in hospital recieving the drug through an IV catheter. This drug can lead to complications if I get an infection in my brain. There is a particular virus I get tested for every 6 months known as JCV (John Cunningham Virus). If exposed to this it can lead to PML (Progressive multifocal leukoencephalopathy) which can be fatal.

    I want freedom to go overseas for as long as I want without restriction. I don't want to spend over an hour each way on the bus because there isn't sufficient disability parking at the hospital. Almost 5 hours of my day is spent getting this treatment then off to work I go for 5+ hours. It can be draining.

    Please help in anyway you can so I can break free from this cycle. 💜🤞

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  • My Reality      26 February 2020
    Posted by: Lynn Yeaman

    So tonight after what felt like a long, hard but rewarding shift at work I finally mustered the energy to go in the shower. Now to most this seems like a simple task but for me with my fatigue, muscle spasms and heat sensitivity it is far from simple. Well tonight the reality that I NEED a shower chair has truly hit me. It's devastating really. I feel robbed of my health and of my years. This is something no 26 year old should ever have to think of. These are thoughts and events in my life I have hidden from everyone even my family over the past 5 years. However now I know I need this treatment now before I am no longer able to do anything for myself. So I have decided to share as much as possible so that people can begin to understand the "why" behind the need for this treatment.

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  • Our fundraising so far      22 February 2020
    Posted by: Lynn Yeaman
    Main image

    We have raised $637.90 through our fundraising events so far.

    It's early days and we are doing well.

    Thank you all for your support and may it continue 💜💰

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  • Feeling useless     20 February 2020
    Posted by: Lynn Yeaman

    So today I felt like I let myself and my team down. People may not know this but high temperatures really affect people with #MultipleSclerosis I was fine in the morning but as the day went on I became quite ill. I tend to try and work through it as I feel if I don't I am letting my MS win. Fortunately I work with some amazing people who made me go home and look after myself. I feel useless at these times. I just want to be a healthy 26 year old. I want to be able to make plans and know that I will achieve them. Instead I often have to cancel or cut things short due to my illness. My only hope is to get #HSCT. Sadly it will be many years before it is approved for MS patients in New Zealand and by then I could be paralyzed, blind or bed bound. This terrifies me constantly. I really dont know how I could live like that or survive as it would not really be living. My MS takes away my security, opportunities and social life. Please if you could spare anything or atleast share my page it would mean the world to me. Every day that goes by the chances of a catastrophic relapse become higher. 😞

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  • Why I am fighting for my job     13 February 2020
    Posted by: Lynn Yeaman
    Main image

    Today at clinic was a strange day of highs and lows. A good samaritan found a beautiful Lorikeet and dropped it into clinic. He was clearly owned and missed by someone so we went on the hunt for the owners. In the meantime he got to hang with me for a bit while I did some paper work. Which made a boring part of my day quite fun! As the day drew on I decided he would come home with me and I would continue the hunt for his owner. At the very end of my shift some lovely clients had an emergency where unfortunately they would have to say goodbye to their beloved pet. I was fortunate to comfort them in their difficult time and hopefully make a really difficult time just a little bit easier for them. This is the reward I take away from this particularly difficult part off my job. After arriving home from work and settling the Lorikeet in with some food I was given a lead by a friend and low and behold it was the birds owner! Only an hour of getting home and he was reunited with his owner. They were so relieved as he is very loved and they had feared the worst. They wanted to pay me and I simply said no. My payment in these situations is the joy I can see on the owners face and knowing that animal is so loved and will be safe again. I love my job and truly think it is my calling. I see getting this treatment as my only hope of continuing and so I will fight for as long as it takes to achieve this. Thank you all for your support. 💜

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  • Help us      9 February 2020
    Posted by: Lynn Yeaman

    We really appreciate all the support we are receiving 😍😍thankyou but please share and donate $1.00 or £1.00 will make a difference🎉🎉🎉 be one of those people that helps Lauren get this treatment 💜

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  • Feeling Hopefull     3 February 2020
    Posted by: Lynn Yeaman

    Well it's been a while since my pain over my whole body has been so bad and the spasms are out in full force! The hot weather really gets to me. I will be lucky to get a few hours sleep. However as always I will paint on my smile and carry on. Why? Because I absolutely love my job. Because my animals need me and that means more to me than self pity. However I do look back on a life where I had no pain, no spasms, no fatigue, no heat sensitivity, no worry of waking up and possibly being paralyzed... I do sometimes feel robbed of a life I dreamed of. As I am I cannot travel the world for long periods of time. I cannot help animals in need outside of New Zealand. I cannot get insurance, I need an infusion every 5 weeks and I need my daily dose of 30 tablets to function. Basically your support had allowed me to dream again and imagine a life I once saw as impossible. I have even started to learn spanish so that after my treatment and recovery I can travel around Spain working with animal charities. Please share, please donate or even just offer ideas. Your help no matter how big it small will change my life for the better. Thank you!

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  • Couldn't get my blister packs     16 January 2020
    Posted by: Lynn Yeaman
    Main image

    Hi everyone thank you for all your support. Here is a picture of 6 days worth of my medication 😮💊. I couldn't get my blister packs ready for a few days. I am so used to taking my medications after a few years I have lost sight of just how many I take a day. I just added it up and I take 27 tablets a day! I can only imagine now what life would be like without the meds but wouldn't it be amazing? Please keep sharing and help this become a reality 💜💜

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  • Its Christmas 🎄🎄🎄     17 December 2019
    Posted by: Lynn Yeaman

    We are so grateful for the donations we have received especially at this time of year 🎄🎅🎉.

    So please keep donating and sharing we need to get Lauren this treatment THANKYOU 😊

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  • Lauren Here!     11 December 2019
    Posted by: Lynn Yeaman
    Main image

    Thank you to everyone for being so generous especially at this time of year. I really didn't think we could possibly raise enough money for the treatment. However with the progress so far it really could happen. Thank you for giving me hope! Cute bunny pic of Kale for attention lol

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  • Lauren's tells how it feels💜     7 December 2019
    Posted by: Lynn Yeaman

    You have all been really amazing! I truly can't believe how generous you have all been. As a thank you I will be more open and share exactly how my MS rules my life. The other week I had an MRI, my transfusion in hospital and a hospital appointment all in one week while working full time! That in itself is exhausting. It feels like a full time job managing my illness. Tonight writing this I am beyond exhausted. My hands are shaking with fatigue and spasming 😞. The bones in my arms feel like they are rotting from the inside and my knees are on fire. It is so difficult having an invisible disease. People cannot see the excruciating pain, debilitating fatigue or the depression it brings me. There really is nothing worse than feeling terrible and being told you look great. But the scariest and most debilitating part of it all is not knowing. I live in fear of going to bed and waking up to not feel my legs or arms. If I could just have the gift of not having to worry it would change my whole life. Thank you all again. Please share the page far and wide. Or even this post to help inform people of how MS rules your life.

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  • Thankyou 💜     4 December 2019
    Posted by: Lynn Yeaman

    Thankyou💜 to all the amazing people who have donated to get us to this great amount in such a short time💜

    We will be fundraising starting in January so keep checking the page for updates .🎉🎉🎉

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  • THANKYOU 💜     28 November 2019
    Posted by: Lynn Yeaman

    Would just like to say how grateful we are for all the donations 💜 and to all the people who have shared her page . Please keep sharing THANKYOU 💜.

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