Lauren's MS Treatment - Reprogram Her Life
Lauren's Multiple Sclerosis is ruining her quality of life. She needs HSCT treatment ASAP before her symptoms worsen.Auckland
I need your help - my beautiful, amazing youngest daughter Lauren has Multiple Sclerosis (MS). https://www.mssociety.org.uk/about-ms/what-is-ms
In Dec 2015, at the age of 22 years old, she was told the news that changed her life and ours.
Like many of you reading this, we didn't know much about M.S. - we do now.
Lauren has what is termed 'relapsing-remitting MS'.
Daily she lives with constant nerve pain, spasms, loss of feeling in arms, legs and chronic fatigue.
What this means is, that in order to get to work and lead as much as a normal life as possible she has to take a cocktail of medication. She also has to get an infusion of a specialised drug every 5 weeks at the City Hospital to help slow down the progression of her MS.
At the time of diagnosis Lauren was studying for an IT degree at University. Her outlook changed and she decided that - not knowing how her MS would progress - she needed to do something that she really cared about and had a passion for.
At the beginning of 2019 she qualified as a Veterinary Nurse and was rewarded with a full-time position at a local Vet Practice. Lauren loves animals having previously volunteered at the SPCA.
Having MS along with a full time job Lauren has no energy for anything else except looking after her dog Boss and her rabbits Kale and Tequila.
Lauren's DREAM is to work with animal charities around the world caring for stray and sick animals.
To achieve this dream Lauren needs to have the only treatment currently available to halt the progression of MS. This is not available in New Zealand. Which is why we need your help to raise money for Lauren to go to Moscow where the treatment has been successful.
What is HSCT?
Haematopoietic stem cell transplantation (HSCT) is an intense chemotherapy treatment for MS. It aims to stop the damage MS causes by wiping out and then regrowing your immune system, using your stem cells. https://www.mssociety.org.uk/about-ms/treatments-and-therapies/disease-modifying-therapies/hsct
Lynn Yeaman's involvement (page creator)
I am Lauren's mum who has to sit and watch her life fade away.
Use of funds
To pay for treatment in Moscow ($78,000), Flights, Accommodation, and Medical and living expenses for her Recovery (up to 6 months) which would not be covered by the New Zealand Health System. Any money left over would be donated to the MS Society.
So this year I have been battling with many health issues. I refuse to let it get in the way of my work too much but man it makes every shift so difficult.
At the moment I am battling sinus issues which cause sleep apnea meaning I'm lucky if i get 4 hours sleep a night. This does not help my ongoing battle with fatigue at all. I am also battling with arthritis in my hands and knees. I have loss of strength in my right hand and arm and recently the vision in my right eye has went blurry.
One of the most difficult symptoms to deal with and talk about is my difficulty going to the bathroom. I have to take medication to do this basic task. This symptom truly makes me full utterly useless. I cant even do a basic bodily function and I am only 27 years old.
What makes all of this worse is the failure of the health system to provide me basic care. Every department palms me off to another and it is a constant battle between the other departments blaming my MS and my neurology team saying it is not the MS. I have now decided to only go to appointments that are necessary such as my infusion and drug review.
I am currently at breaking point. I don't know what to do anymore. The saddest thing is I have begun to look into legal euthanasia. I cannot imagine going through all of this for another 50 plus years.
I am torn between making a decision to enjoy a really good few years and end in a good place. The alternative seems to be suffer for 50 plus years.
At the moment with covid my fundraising has stalled and I am really doubting I will be able to meet this goal and get the treatment.
This is really difficult for me to open up like this but I want to be real with you all. Every single moment of my life is a battle either extreme pain, cramps/spasms, vision problems, breathing problems, loss of feeling/ strength, unbearable fatigue and extreme depression.
Hopefully sharing helps. Thank you all for your support it really is appreciated.
This side of MS isn't shown often and I'm glad I can finally begin to make people understand what it's like to have a silent and slowly debilitating illness.
Please help donate and share thankyou 💜
Your so kind! I'm so glad to hear about Astra's progress. It was so nice to see her this week. Can't wait to hopefully see her soon. 💜🐾
Thank you Roy. Life can be difficult at times and I hope your circumstances are better now. Your support and understanding means a lot 💜
Hope you enjoyed your long weekend. Your ongoing support is amazing. Thabk you 💜
Thank you so much especially at these difficult times 💜
FundraiseYou can start a fundraiser to have your own page that raises money directly for the beneficiary.
Got a question for the page owner?Ask one here
Want to display a QR code that links to this page?Grab a QR Code
Any concerns?Report this page
This page was created on 16 Nov 2019 and closes on 9 Nov 2020.