***UPDATE*** - Exciting news! 11 September 2020
“Hi everyone! Well, there’s been a major turnaround of events regarding me trying to get to Russia for treatment. The borders simply aren’t opening up and I feel like I’m running out of time. My mobility is deteriorating rapidly now and I feel like time is up and drawing to a close with being able to beat this thing. The borders to Russia remain closed and show no sign of opening any time soon. Unfortunately, Russia is now become a no-go for me. The only other option was for me to go to Puebla, Mexico for the exact same treatment, at the exact same expense at Clínica Ruiz (the highest volume HSCT centre in the world). However, the borders there have been closed as well. I always felt Russia would have opened first.
BUT….by some small miracle, the borders have now opened in Mexico AND a space has become available at Clínica Ruiz! I simply cannot wait. I have to go. I’ve taken the drastic measure of mortgaging the house and taking out a personal loan to cover the cost of treatment. I have to leave in….2 WEEKS!! Claudine is coming with me as we will be living in an apartment adjacent to the clinic for a month and I’ll need a full-time caregiver when not inside the clinic. We are off! It’s all so sudden and there’s so much to organize, but I’ve always maintained I can’t and won’t stop without giving this my best shot.
Guys, when this page was originally set up, I thought I had the time to raise the funds before I left. This MS has proven me wrong. It’s showing me that once it takes grip, it waits for no-one. So the focus of the page has now suddenly needed to change. The new focus is on raising the funds to pay for the mortgage and personal-loan debt this treatment is now forcing me to take on and that I’m going to have to face when I get home from Mexico. It’s huge and it’s stressful but I know in my heart it will be worth it. I want you all to know that I appreciate each and every single dollar you’ve all been so generous in giving me to help me on my way. I appreciate it beyond words. Can you please all do me a favour and share this page with as many people as you can. Every single dollar makes a difference. Thank you all so much.
I have set up a Facebook page so you can all follow my journey to Mexico. You can find it at this link https://www.facebook.com/leesmsjourneytomexico. Claudine or I will be updating it daily. Love Lee xx