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Leigh's Cancer Challenge- supporting Leigh and family

  • Thank you

      2 May 2022
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    Yesterday marked one month since Leigh graduated to glory.

    Gemma, Julia and I feel like we have only recently started to really grieve.

    Each day has its moments.

    What I do want to do is take a moment to thank each person who has been involved in our journey:

    To those of you who came to the funeral, thank you! Each of you being there made it so special. I'm sorry if I didn't get to see you all I was so inundated by people and the day was so surreal.

    Thank you to those who watched online.

    To those who were a part of the funeral, - you are each incredible!

    To those who have sent/sending messages, phone calls, gift cards, flowers, food, cards, visited, thank you. We have felt so loved.

    -For those of you who helped with meals - thank you so much - when we couldn't cook for ourselves/just did not care about food,- it was already there.

    I just wanted to take a moment to say thank you. We are so greatful. You have helped make a difference in our lives.

    May God bless you all abundantly!

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  • Graduation Service

      6 April 2022

    Hi there,

    A service to celebrate Leigh's life will be held:

    Monday 11th April at 1.30pm

    At

    Legacy Gardens

    53 Te Okuroa Drive

    Papamoa

    1.We have decided to wear Leigh's ties in various different ways to celebrate part of him.

    We would like to extend the invite to all of you to join us in wearing a tie, whether it be on your wrist, round your waist, neck or hair or tucked in a pocket.

    2. Leigh was a great car guy. He especially loved his classic cars. At the end of the service, as well as the traditional option of petals, we have a small number of matchbox type cars that can be placed on Leigh's casket. If you have one you would like to contribute we would welcome that. These cars will all be mounted and framed after.

    3. We will also have the funeral available on Zoom.

    Please send me an email or DM me with your email address so I can send it to you. I believe it may also be available on the Legacy funeral website.

    A huge thanks to everyone who has supported us and still is. We love you all.

    Thanks very much.

    Tracy

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  • The saddest news

      5 April 2022
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    ♥️💔

    For those for do not yet know...

    My soulmate Leigh, Julia and Gemma's wonderful Dad, graduated to heaven on Friday morning 01/04/2022, after a short battle with cancer.

    He was an incredibly brave fighter right to the end.

    He was at home. We had the priviledge of loving and nursing him the whole way through.

    A service will be held to celebrate Leigh's life on

    Monday 11th April at 1.30pm

    At Legacy Gardens Papamoa

    Futher details coming out in NZ Herald tomorrow morning.

    We are available for phone calls and visitors.

    We would ask that you keep visits between the hours of 10am and 12pm and 2pm and 7pm.

    Please can you let us know first as we have much to organize.

    Our love and huge thanks to you all for your support.

    Xxxxxxxxx

    ♥️

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  • Next update 5th March

      14 March 2022
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    And now to the latest news.

    Difficult to share:

    This last Monday (end of Feb) we made a big decision. It was a tough and a difficult one and one not made lightly.

    It is becoming more difficult for Leigh. He is more tired, spending most of the time in bed. When he has blood transfusions he spends all day at hospital and then 2 days to recover from the exhaustion of having it. By then most of the benefit is lost. By the way his bloods are tracking he would be requiring another next week.

    His haemaglobin this week is 93.

    The cancer centre had said to us previously that when we got to needing the transfusions weekly they would stop them. So we have constantly had discussions- are they still ok? Are they what Leigh wants?

    It has got to the stage where Leigh's quality of life is super tired and not so good. So on Monday, Leigh decided to say No to any more. We are fully supporting him.

    What does this all mean?

    Well, the rest of Leigh's bloods are already at a very low level.

    Without the red blood cells going in, those levels will drop too. From what we have seen recently as time goes on they will drop faster and faster.

    Leigh will want to sleep more and more.

    Julia and Conor arrive tomorrow to spend some time.

    We are currently trying to organize as many things as we can.

    How is Leigh? How are we feeling with all this? Leigh is very peaceful. We all know it was the right decision. And yes, it's very difficult too. We appreciate all your love, prayers and support. As always the last decision is God's!

    Our thanks to so many people including: family, Carol and Mike,

    June for her help with my business last week, Waipuna Hospice, our GP, the Cancer Ctr, Tauranga hospital, our friends and family.

    We will keep you updated as we can.

    Our love to you all

    Xxxx

    ❤❤❤

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  • February update no1

      14 March 2022
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    Here's our 1st update as posted recently on Leigh's Line...

    We have a couple of updates for you.

    Firstly FEBRUARY NEWS

    February ended up being not quite what we had planned or expected.

    Leigh has been having bloods weekly for quite some time to check on his levels. His GP had been trying to get Leigh into Daystay for a transfusion for a couple of weeks.

    On the 8th of Feb we got a phone call to say that Leigh's haemaglobin dropped to 69 (dangerous) which meant that on Tuesday we ended up with a trip to hospital for emergency transfusion and then potassium as well. ED was so busy that Leigh waited 6hrs to see a Dr.. so ended up having the transfusion overnight. Not much sleep was had. By the time he had had the third bag of blood, he had fluid overload.

    The hospital wanted to give him a 4th and gave him 2 options, however by this time it was @3pm on his birthday. Leigh took the 2nd option of going home and having bloods the next day to see where his levels were at - with the possibility of going back and doing it all again... Thankfully his haemaglobin was at 98, so we did not have to go back.

    The bonus of going into ED was that we got to connect with Haematology very quickly, got back on their books with clinic for the next Tuesday morning. Whilst this is on a management basis only, we got to ask our questions, figure out where the heck we are at, - and things happen a lot faster than they do out in the community. The consultant that came to see us stressed that he did not want Leigh's levels going below 80.

    It seems that the lower they go, the faster they drop. Leigh was at quite a dangerous level.

    So, the next week his bloods were at 96.

    The 2nd thing they are watching is that his platelets are dropping. Now down to 45. At 40 they will stop his aspirin. The argument before, was that the aspirin was stopping his stroke. So platelets are also the things that help you clot. When very low you are at risk for a big bleed. (We now know that the aspirin makes the platelets less sticky - which has to do with the stroke side of things.)

    (N.B. The hospital policy has now changed so much that they only allow one person per household per day visiting. )

    So Leigh's birthday ended up being a very quiet affair. Julia flew down Monday to early Wednesday morning to spend some time and everyone was glad she did with what was happening. Julia and Tracy talked late Tuesday night and into the wee small hours.

    So a normal haemaglobin for a man is: 130 - 170.

    Normal platelet range is: 150 - 450.

    School has started.

    Gemma went back to college. Along with her 2 part time jobs we were hardly seeing her. This is her last year and she is currently weighing up university options for next year.

    Week beginning 14TH FEBRUARY

    Tracy's managed to squeeze in her magazine. The cookbook is also back from the editor with work needed on that and along with some other work on her business.

    We have also had other appointments, and support from Waipuna in a huge way. They are absolutely wonderful.

    WEEK of 21ST,

    Monday was Tracy's cardiology specialist and results on heart test. Some good news there. The damage has not got any worse. Yay.

    Tuesday was the Haematology visit. We had many questions answered and were offered the possibility of a treatment to increase the amount of Leigh's red blood cells in his body meaning less transfusions. What we didn't understand (till last week), was that it takes 2 months for the test results to come through. We were told we would then have to self inject for 2 months to see any results. A total of 4 months.

    Wednesday - was a day for decisions, and then Covid scares for both Julia and Gemma. Gemma's school had positive cases- in her year and she was a casual contact. At this point we moved Gemma to online schooling. On the same day, Julia's restaurant had to shut down due to Covid, and Julia needed a RAT test, thankfully negative.

    Thursday - Leigh once again needed another blood transfusion. Again we were asking the questions - should we keep going with these or shouldn't we?

    After a long day at the hospital we then came home to no Support worker for Leigh for the evening- we have been having some issues for a while.

    Friday - we again had issues with Carers -no housework either.

    Weekend - we had issues with Carers not turning up. We spent most of the weekend trying to relax, as the week had been so stressful.

    On the Monday I rang, put a complaint in to our Support Worker place, and have since sorted quite a few things.

    Whilst this time has been rough we are grateful to Waipuna for their help with vege boxes and food parcels, Counselors, Chaplains.

    And as always our thanks to so many people including family, Carol and Mike, Waipuna Hospice, our GP, the Cancer Ctr, Tauranga hospital, friends and family.

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  • PART 3. PLANS/ GOING FORWARD/ THE NEW YEAR

      31 January 2022

    PLANS/ GOING FORWARD/ THE NEW YEAR

    A number of things have coincided at once necessitating in some forward making decisions, an attempt to introduce some normalcy and some very hard work behind the scenes to get to where we are today.

    1. Owners visit.

    This happened 2 days ago (Wednesday). Gemma and Tracy worked hard to get the rest of the house tidied, unpacked and in order, not just for the visit, but the beginning of the year and many other things that need to happen. The visit went really well with a good relationship established.

    2. Functional office.

    As part of moving forward and so many other things, business etc, Tracy is looking to move into the main income earner as a writer/proofreader/editor working from home.

    The garage has now been set up into a functional office and is now also unpacked and plugged in. I'm (Tracy) due to have a magazine come in in the near future for work and want to be available for that and other work. (I have already been working with this company for 2 years.)

    The frustration has been discovering a multitude of items that need replacing, new hardware, software. Plus the need for up-skilling and full qualification. Added to that business email has been out of action for the last week, but after some late nights and monumental deletions is now currently working.

    Thanks to June so much for your help in setting up the office.

    N.B If you have sent Tracy's business an email in the last 7 - 10 days and not received a reply, please resend. Thanks. And apologies.

    3. Gemma's return to college. Gemma and we have decided at this point that Gem will return for her final senior year. Much discussion has been had around Covid, where it is at in the community and the risk it imposes upon this household should the cases rise substantially in the area. We have a plan in place requested by Gemma and under advisement by our GP should the need arise.

    4. Garage sale online.

    In unpacking, we have a huge load of "stuff" we no longer require and will do an online garage sale in hopes to help raise some of the funds we require for the needs we are identifying going forward and will list our needs below in more detail.

    5. Garden. In spending much time at home, Tracy has grown to love her time in the garden and it is slowly beginning to flourish, with many herbs, veggies and flowers, which she is still impatient with. "It's my therapeutic space - when it's not too hot!"

    6. Friday's health.

    We had a phone consult on Friday with the GP. He was most surprised to learn of the 4 month wait for a Haematology visit. He thinks we may receive a call within the next week.

    Leigh's bloods have dropped quite quickly over the last week and his haemoglobin is indicating that he needs another transfusion. Back to the "do we or don't we" question again. At this stage it has been organized.

    Leigh's platelets are still dropping, but not quite so fast, and his potassium thankfully is a bit more stable.

    We repeat the bloods along with a transfusion form that Tracy accidentally called a "click and collect" form on Tuesday.

    This is the first week since before Christmas that his bloods have not been stable.

    However, we live day by day. A much simpler motto.

    We are greatful for each day.

    7. We have felt that Leigh is still here for a reason and have been talking over the last week about this and about not wasting time. About what he/we can be doing with this time and how to best use it, to leave a legacy whether he or any of us have weeks, months, years, decades or centuries to live. We listened to a small clip from a guy named Jordan Peterson who talks about living the best plan for your life - its actually pretty simple and awesome no matter what age you are.

    What's your best plan for your life right now? Good question right?

    7. Humour - always needed.

    Dinner antics - these happen nightly especially with plenty of stir-fry veges. It's Tracy aim to increase the nutritional value, but some might say this is just cruel for a shakey hand. As a result "grrr, arrgh, and whoops sorry" can be heard nightly as fork loads of items make their way across table, shirt and floor. Remind me to tell the carer it really isn't Tracy's fault there are so many loads of washing!

    And we might have to ban the Tomato sauce bottle after tonight. I was not allowed to take photos. 🤣😉

    *************

    As always we appreciate your love, prayers, support and friendship always.

    Our love to you all. Xx ❤❤❤

    ******************

    P.s. I'm sure there will need to be another update soon as we attempt to put all this in place and things just happen plus I've realised it's Leigh's birthday coming up!!

    No counting just celebrating...

    *********************

    We are wanting to give Leigh a special birthday celebration, so stay tuned.

    *********************

    **********************

    Known needs at this point in time or to come:

    Gemma's final year at College

    *School uniform and shoes $170

    *Stationery $50 at this point

    *2nd hand iPad @$300

    Tracy's Buisness and Upskilling/Qualification

    Editing and Proofreading course with NZBIS $3250

    Microsoft Home Office Business package $439

    New Printer suitable for editing (many pages) @$400

    Ink @$100

    New Mouse $24

    As always there is no requirement for you to give. Any support, thought, love, prayer is always so greatfully appreciated.

    Thank you.

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  • PART 2. JANUARY 21ST

      28 January 2022

    JANUARY 21st.

    Copied from our family chat line...

    "Our GP rang at 12.30pm. He has spoken to Hematology this week. Our haematologist is still away. Back next week.

    Basically after Leigh's stroke, it was so severe they expected him to die and discharged him from their services completely.

    Their words to the GP is that he has had a much greater recovery than they ever expected and even to the fact that Leigh is experiencing independence with his walking, dressing and all sorts of functions than was ever expected. A miracle.

    WHOOP WHOOP

    We can expect a phone call next week advising that Leigh has been put back on their books and appointments again.

    Even if just for management- not sure where that will lead to yet. But we have a lot of questions that need answering.

    In terms of his bloods, his haemoglobin is fairly stable, but platelets continue to drop. They are now down to 59.

    They advise to keep taking the aspirin until he drops to 40 because of stroke issues.

    Leigh is still neutrapenic and is still cautioned to be extremely careful around infection etc.

    I feel we have won a victory and a miracle of sorts!

    Totally blown away!

    The future is not easy, but oh wow we have sure been blessed as a family. Who says God doesn't answer prayer? He has sure answered ours!"

    *************

    So we then received a letter in the post last week from the hospital saying we are in the queue for Hematology and to expect an appointment within 4 months.

    **************

    We will keep you posted.

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  • Part 1 of about 3. CHRISTMAS AND EARLY JANUARY

      27 January 2022
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    Hi everyone, we are well overdue some updates.

    Here is the first one of around 3:

    CHRISTMAS AND EARLY JANUARY UPDATE

    Christmas was quiet but amazing.

    Tracy's step-mum June came for breakfast. She was very tasty! As was everything else on the table.

    The rest of the day consisted of Zoom/message calls, messages/ and oh so many phone calls.

    We had extra presents dropped in by so many people:

    Waipuna hospice

    Curate church

    Friends

    So generous family

    Visits after from Margaret and John.

    Then family staying:

    Julia and Conor stayed almost 2 weeks.

    During that time, Tracy's sisters also came.

    There was so much laughter our stomachs hurt! With extra large jumbo card games and the funniest games of Telestrations that we have ever played.

    Further visits through January from Suni, Jen and Mel also, and our good friends Mike and Carol with their extended family.

    So amazing!

    We have been down the beach often.

    Leigh has had visits from a few people.

    It got so hot in Bay of Plenty we invested in a large paddling pool. Best investment!

    On the health side of things:

    Physio not coming anymore - they have reached their end of what they can do and handed over to Waipuna. They finished before Christmas.

    Leigh's haemoglobin sort-of stable, platelets really low, potassium low, monitoring that.

    Leigh continues to be very tired. He sleeps lots.

    We make as many moments as possible.

    Cuddles, chats, moments at the beach, with others, etc.

    Tracy went to cardiologist. Has a heart issue with a leaky valve. Some testing being done. Awaiting the results.

    It has been wonderful being together as a family, and with extended family and friends. Many special moments have been spent.

    We are so thankful to so many ....

    Friends, family, Waipuna Hospice, Access Health care, Drs and staff helping, more friends and family and so many people praying.

    We love you all!!

    Stayed tuned for some amazing news soon.

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  • Updates before Christmas

      21 December 2021
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    Hi everyone,

    There is a bit to catch you up on, on our rollercoaster journey. So in no particular order:

    * Gemma is back at both jobs part-time and enjoying it.

    * Leigh's car (now claimed by Gemma) was only firing on 3 cylinders and we have had some help having it fixed! Thank you so very very much!

    * Leigh's shoulder continues to subluxe, and he has a knot in the deltoid muscle so the OT has been taping his shoulder. He has made good progress stroke wise and has even learnt to make his lunch. His walker has been replaced with a new on, with a tray so he can take his lunch and food outside.

    *We have had lots of visitors: - sisters - Jen & Mel, Margaret, and Suni.

    -Julia and Conor have been down for a night. -My step-mum June,

    -Friends, Di & Geoff, Carol, Glen and the Hadwins with Paul and Vanessa all the way from Canada and their darling children Katherine and Jett, oh gosh and Jane. I hope I haven't forgotten anyone.

    * Our health carers are wonderful, but the system is, let's just say severely lacking. We have had some ridiculous moments- still!

    *Tracy has had some highlights recently with Tauranga Writers' annual Byline coming out. Both writing and some editing.

    -Also the long awaited co-written cookbook has gone to the editor.

    YEEHAA

    -A ladies group that Tracy had been missing turned up with a bag of presents. Wow!!!!

    -Health: Tracy has a few issues of her own and is booked in to see a cardiologist early next year.

    *In spending more time at home the garden has become a wonderful place to be and is currently blooming. Our tomatoes are a jungle!

    Last week:

    *Leigh's bloods have been quite constant meaning he hasn't been able to have another blood transfusion. Yet he has still begun to feel like he needed one - more tired, slower, less energy, can't concentrate, sleeping more.

    * When we went to the GP last week we were told that his cancer is progressing. He has been given multi-vitamins and steroids to see if it helps his energy levels.

    * Leigh has been doing so well for ages, so to hear that another transfusion wasn't going to fix this was a bit of a shock. We had expected the status quo to continue until after Christmas.

    * We have had the Hospice nurse out and had a talk with her about what to expect for the future. Also very sobering.

    * We have all had a re-think about what we will do for Christmas and what Christmas means for us. I can tell you that all the presents and food in the world don't do it! More than ever people mean more. I'm starting to tell people I love them, they mean something to me. If i haven't told you this yet - you do too, simply because you are reading this!

    ********************

    So Christmas this year?

    ***********

    Champagne breakfast.

    Zoom calls with Julia and family

    BBQ lunch

    Sleep

    More zoom calls!

    Some games thrown in

    ****************

    Time spent together in whatever way will be ever so precious.

    Julia and Conor are coming down in the New Year and some family, so lovely.

    ♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡♡

    Finally,

    Wherever you are this Christmas,

    If you are with loads of family, or with a group of friends;

    If you are alone this Christmas,

    You are special, unique, amazing!

    There is no one like you in the universe.

    We wish you an amazing day.

    It's not about the food or the presents.

    We personally celebrate Jesus's birthday.

    Our thoughts for you:

    May love fill your hearts

    May peace be all around you

    May joy impact you this Christmas.

    Love to you all

    Xxxx

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  • 2nd part of the update (continued)

      7 December 2021

    Leigh has been at home now for 4 weeks.

    -we are settling into a routine of sorts

    -some days now we actually get 3 caregivers turn-up, and now have help with washing and dishes as well. This means that things around the house are much more up-to-date.

    -we have even had time to unpack a little more

    -we have hospital OTs giving Leigh exercises and it's great to see every advancement in movement over a week which is a new milestone.

    -Leigh's short-distance walking and stepping is improving. His right arm bends at his elbow very well and his shoulder-shrugging is constantly improving. We are still working on the knot in his upper deltoid muscle to improve his upper arm function.

    - He continues to slowly tire. He had a blood transfusion 3 weeks ago now and is ready for another. We have made the decision at this point to keep the blood transfusions going until Christmas as they still seem to be helping, albeit less. This decision will be reviewed after Christmas.

    - Over the last wee while we have been to the beach for lunch, had quite a few visitors in, and watched a movie together. Things which previously we might have taken for granted, now, are wonderful to share.

    -In an effort to continue and lift life we have discussed further measures of afternoon tea's, visits, beach trips, Bible studies, Netflix series, and the new Diana Gabaldon book coming out as Leigh's energy allows.

    - Funny moment 2 weeks ago: Leigh was trying to remove some food stuck between his teeth. Next minute we hear an "aarrggh clunk" as his lower bridge shot out of his mouth and down the toilet.......

    - And now some wonderful news...

    A couple of weeks ago the OT came out and worked on Leigh's feet with exercises and massage. Afterwards, he walked down the hall and back on his own, for the very first time!

    He grinned like a Cheshire cat and hugged the OT. I cried! I didn't think I would ever see him do that. It was wonderful! He has done it several times since then, but it does take a lot of hard work and concentration.

    -Last week our fridge started to die. The thermostat gave out. (It is not the first time and beyond its warranty). But thanks to you all here we have been able to replace it with no stress and a fabulous Black Friday deal too.

    So without further ado, we want to say a huge thanks to you all.

    Thanks for just how much you have all helped over the last few months and how much stress you have taken out of our lives. So this is what your GiveaLittle funds have been helping:

    #Petrol for all our numerous visits to the hospital and all over town

    #meals out while at the hospital, coffee's while there

    #extra nutritious food and our Wedding Anniversary lunch

    #all the bills have been paid on time!

    #a lawnmower and line trimmer that Gemma and I can handle (cheaper than lawnmower man)

    #replacement fridge

    #memory foam mattress topper as Leigh spends most of his time in bed

    #thanks to you we have also bought some Christmas presents for what could possibly be Leigh's last Christmas.

    One day at a time is a great way to live. Memory building.

    Thank you so much for all your help!! We appreciate you all and couldn't have done this without you.

    Loads of love, Leigh, Tracy, Julia and Gemma

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  • Updating the last 5 weeks...

      5 December 2021
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    Update time with some awesome news...

    *Leigh has continued to slowly gain use of his leg and arm and can walk very short distances!

    *The 2nd of November marked our 25th wedding anniversary and we celebrated with a small lunch the weekend before and Leigh had leave from the hospital to come home for it and stay the night. We are so greatful to have made it to this date, as not so long ago we did not think we would.

    *On Tuesday (our actual anniversary) Tracy had some small but well overdue surgery at Tauranga hospital. It went well. She ended up staying 2 nights instead of the expected 1, and has recovered well.

    *Leigh came home from hospital on 8th November! He will have Hospice help 3 times a day ongoing and a few other rehab people coming in and out. 🥂☕

    We will keep you updated with progress and photos!

    *In other fabulous news Gemma has passed her school year. Whoop whoop!!🎈♥️🍾🥂

    * Coming home for the first week was quite a shock for everyone and a big change in all our lives. It's been nothing like we expected. The initial coming home was exhausting for everyone.

    It is good to have him home and Leigh is happy to be here.

    We have had quite a rollercoaster ride trying to sort Carers out - actually turning up, what times they turn up, and what they will and won't do- the downside was having to put a complaint in, enough said.

    The hospital OTs have been great.

    *Waipuna Hospice is wonderful and has been there at every turn and through the night.

    *Every day has been different, full, busy, with a new range of challenges as we are still trying to find our feet, what works and what doesn't. Giving and taking, co-operation, extra grace, love and kindness needed in great abundance.

    *Julia and Conor went home on 15th November as they had work starting and a smelly apartment fridge to clean. There were lots of hugs and kind words and a few tissues.

    15th November- Leigh has found the last few days really hard going as he is in need of a blood transfusion and can't get in to the hospital day-stay unit till Wednesday. (Out in the community everything is slower again.) This in turn has repercussions and Leigh is spending these days in bed as he is just too tired and weak. The Waipuna nurses tried to hurry it up this morning for us with little success.

    *The reality of facing cancer at home in your family with Hospice care is tough, hard work and emotionally exhausting sometimes too. It becomes important to try and find a smile in at least one thing in the day if there isn't something already. So let me tell you some of our smiles and things we are greatful for:

    *Julia and Conor have been amazing. Conor's cooking is 2nd to none, so you are well privileged if you are made a meal by him.

    * Conor also took control of the gardening while he was here. The flowers are blooming, we have snap peas, zucchini, peppers, chilli, parsley, coriander, tomatoes, basil, and a whole heap more and he is an expert slug hunter and counter...he got 120 in one night.

    * Julia has done most of the dishes and cleaning of the kitchen - oh my gosh does that take time.

    * She has helped with my office also.

    * Gemma has become a wonderful lawnmower, weedeater, grocery shopper, home help, cook...and does anything without complaint.

    Moments:

    * One night at dinner Leigh sneezed and involuntarily shoved his dinner plate off the table with his right arm, and successfully caught it with his left hand. That got a ton of laughter and a round of applause.

    * Saturday night (13th) we had dinner and games and had a few laughs with "Game of Things" and "Telestrations"- hillarious games.

    Things to be thankful for daily:

    * a wonderful Heavenly Father who knows what we need

    * friends and family

    * flowers blooming in my garden

    * special moments, hugs, deep discussions, looks, and laughs with each other.

    Love to you all. Xxx

    More news to come very shortly....

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  • New update with some much better news

      25 October 2021

    Where do I start? Leigh continues to live and defy all odds!

    It's been 4 week's since his stroke, since he was told he had 2 weeks to live.

    1 week ago he was completely re-evaluated by Dr's, physio and OT. He had more movement in his leg and a little in his arm (as opposed to almost none).

    So, he was then moved to the rehabilitation ward. We were so delighted! The decision was made to treat stroke and cancer separately. Chemo and BMT still off the list, but blood transfusion and rehab on.

    He is still considered terminal.

    Still - onwards and upwards!

    Over the last week, Leigh has progressed to walking a very few steps, more on his walking frame.

    Last Friday, he did some exercises with both arms for the first time holding a huge swiss ball above his head. He needed a little help at times, but oh the joy to see!!

    Thank you for all your prayers, thoughts, visits, donations, love and caring!

    We know of at least 4 churches praying.

    We are so grateful! Greatful to God, for prayers, for family, for friends, for EVERY single day! As long as we have. XXXX

    Next week, the beginning of November will mark our 25th wedding anniversary. Oh how wonderful it would be, to be able to celebrate it! We are so close.

    How precious is every single day!!

    I would encourage each of you who may not have said "I love you" to someone recently, to reach out. None of us know how long we have. I suspect we are all guilty of taking time for granted. It is so precious. Not only time, but each person is so precious. There will never be another like- 'whoever you are thinking of', right now. Love you all. xxx

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  • Tough news

      28 September 2021

    Hi there,

    Firstly we want to say thank you so much for all our very generous donors. Each one of you is amazing!

    Secondly, some things have changed very quickly.

    This update is difficult to write:

    Between last Wednesday and Saturday/Sunday, Leigh had a stroke that occluded the left side of his brain and damaged the whole right side of his body. The stroke team think he will only get partial use back.

    The cancer team have been in yesterday and advised that the bone marrow transplant is now off the table and chemo will be stopped.

    Blood transfusions were not going to last indefinitely so Leigh decided to just have one more last night.

    We have been advised he has @ 2 weeks to live.

    Leigh will move into hospice in the next few days.

    We are all devastated.

    We didn't expect this.

    We have family starting to come in, to see Leigh.

    Both daughters are here. We have been staying nights with him.

    It's incredibly difficult to write this. Our needs remain, with extras coming in, should a miracle not be forthcoming.

    I'm so sorry for writing this. At this stage we may need help with some funeral costs.

    This is a difficult time and we appreciate your support immensely in any way it is given.

    Love to you all

    Xx

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