Strength We HAVE!
10 June 2019Kia ora everyone. I firstly want to say thank you to all who have donated to this givealittle page.
A bit of an update - I am still having major flair ups but with periods of good times. I recently have had new symptoms in my legs which had become debilitating, we discovered some thyroid issues and that has been addressed and still have mystery heart issues. I also had my two year anniversary of getting ill last month which has been a bit of a blow to think how my life has been in limbo for this whole time. I continue to have testing done. We have discovered a few things but still nothing that explains the overall picture.
You may be wondering why I am still getting tests after all this time. Well it is because I need one test before I can get another done. Also waiting times for specialists and tests can be months, doctors that go on extensive leave, doctors not talking to each other or doctors not giving you the test you need. I am not fitting a box. It has been an eye opener with our healthcare system and an exhausting journey to be my own advocate to get my care. I am grateful for the service I get but the system is so disjointed that it creates more issues then needed.
I am happy to say I am booked into my last MRI in a few weeks. And then we can get on investigating my heart issues. I am currently seeing physio for my legs and starting to see some improvements. Without these extra funds I would not have been able to see my councilor who has helps me deal with this journey and keeps my mental health in check.
The need for ongoing funds are still required and I am hoping by the end of this year all the testing and care I need will be done with. This givealittle page has honestly been a life saver with all funds going to see specialist, having scans, physio etc. When I am well enough I work really hard in the studio to keep funds coming in to pay for my extra care but because my health is never the same day by day it can be difficult for me. Your donations have lessened our family burden when I am unable to work and we are so grateful. I WANT TO GIVE YOU ALL A HUG!
Much Love, Mica and Aaron