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Help women with fibromyalgia by supporting research

Cause page created in the Health category by Sharon Erdrich for "Women with fibromyalgia"

$1,935 of $20,000 goal
Given by 20 generous donors in 4 weeks

Your donation will fund research exploring the role of the gut microbiome in symptoms & digestive problems in NZ women with fibromyalgia.

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Fibromyalgia is a chronic pain condition, poorly understood and difficult to treat.

The majority of sufferers are women. They live with constant pain, fatigue, headaches, digestive problems, sleep disturbances and more. It restricts their ability to function normally on many different levels.

This invisible condition has no obvious disability nor apparent cause, therefore patient experiences are often dismissed. Treatment options are limited and include pain killers, antidepressants and anticonvulsant drugs. No treatment is fully effective and many have to live with the symptoms their entire lives.

Studies have found that patients have AT LEAST one digestive problem, but how these relate to their symptoms is unclear. Often a patient’s symptoms change in relation with digestive function, but no-one knows why.

This research project aims to uncover more about this illness, which may provide information to help guide potential new treatments that target the digestive system and its microbiome to improve symptoms and quality of life in people living with fibromyalgia.

Our aim is to investigate whether gut bacteria are connected to other health problems, such as headaches, fatigue, sleep problems and digestive complaints, as well as other symptoms of fibromyalgia in New Zealand women. The suite of tests includes:

Stool microbiome (shotgun metagenomics),

Breath tests x3 (lactulose, glucose & fructose challenges),

Oral microbiome (shotgun - on those with elevated baseline breath gases),

Blood (RNA, BGL, electrolytes, FORT/FORD test),

Environmental mould (house),

Comprehensive questionnaires, and

Urine for Intestinal permeability (aka "leaky gut")

Sharon Erdrich's involvement (page creator)

I am co-ordinating the research project.

Use of funds

Your contribution will help pay for testing for intestinal hyperpermeability (also known as leaky gut). The cost of this is $130 per person - we plan to recruit 100 women for this study. With extra money, we can check other markers in the urine as well.

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Latest update

Fundraising Target  19 June 2021

Posted by: Sharon Erdrich

Our goal is to raise $20,000, which is the cost of running leaky gut testing for 200 participants (100 with fibromyalgia and 100 controls). Thanks for your help!

Read 2 more updates  |  Share this update

Latest donations

Tommi 15 hours ago
Hi Sharon, may your research help to conquer this mysterious and insdious disease! Regards, Tommi
Trevor 1 day ago
Sharon Erdrich

Thank you so much for your generous donation. Your support is greatly appreciated. If you have specific questions about the project, feel free to contact me directly!

Sharon Erdrich
Latimer 4 days ago
Sharon Erdrich

Thank you for your support - it is invaluble!

Sharon Erdrich
Bridget on 10 Jun 2021
Sharon Erdrich

Thanks so much for your generous donation! Please help spread the word so this quest has a better chance of success! Kind regards Sharon

Sharon Erdrich
Sue on 10 Jun 2021
Thanks for your important work.

Who's involved?

Sharon Erdrich's avatar
Created by, and paying to a verified bank account of, Sharon Erdrich on behalf of Women with fibromyalgia

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This page was created on 21 May 2021 and closes on 21 Nov 2021.
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