Help women with fibromyalgia by supporting research

$2,195 of $20,000 goal
Given by 23 generous donors in around 4 months

Your donation will fund research exploring the role of the gut microbiome in symptoms & digestive problems in NZ women with fibromyalgia.

Fibromyalgia is a chronic pain condition, poorly understood and difficult to treat.

The majority of sufferers are women. They live with constant pain, fatigue, headaches, digestive problems, sleep disturbances and more. It restricts their ability to function normally on many different levels.

This invisible condition has no obvious disability nor apparent cause, therefore patient experiences are often dismissed. Treatment options are limited and include pain killers, antidepressants and anticonvulsant drugs. No treatment is fully effective and many have to live with the symptoms their entire lives.

Studies have found that patients have AT LEAST one digestive problem, but how these relate to their symptoms is unclear. Often a patient’s symptoms change in relation with digestive function, but no-one knows why.

This research project aims to uncover more about this illness, which may provide information to help guide potential new treatments that target the digestive system and its microbiome to improve symptoms and quality of life in people living with fibromyalgia.

Our aim is to investigate whether gut bacteria are connected to other health problems, such as headaches, fatigue, sleep problems and digestive complaints, as well as other symptoms of fibromyalgia in New Zealand women. The suite of tests includes:

Stool microbiome (shotgun metagenomics),

Breath tests x3 (lactulose, glucose & fructose challenges),

Oral microbiome (shotgun - on those with elevated baseline breath gases),

Blood (RNA, BGL, electrolytes, FORT/FORD test),

Environmental mould (house),

Comprehensive questionnaires, and

Urine for Intestinal permeability (aka "leaky gut")

For more information visit the study website; https://www.theFidgitStudy.com

Sharon Erdrich's involvement (page creator)

I am co-ordinating the research project.

Use of funds

Your contribution will help pay for testing for intestinal hyperpermeability (also known as leaky gut). The cost of this is $130 per person - we plan to recruit 100 women for this study. With extra money, we can check other markers in the urine as well.

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Latest update

Covid-19 Delays Recruitment  31 August 2021

Posted by: Sharon Erdrich

Hello supporters and generous contributors to The FIDGIT Study. Unfortunately, right on the eve of rolling our recruitment, New Zealand had an incursion of the delta variant of SARS-CoV2, triggering us into a nationwide lockdown.

When we return to Alert Level 2, we will be able to kick off our recruitment phase.

Thanks again for your support - and .. it's never too late to spread the word!

Stay safe out there!

Sharon

Read 5 more updates  |  Share this update

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Latest donations

Guest Donor
Guest Donor on 31 Aug 2021
Private
Sharon Erdrich

Thank you so much for your generous support of this project. I really appreciate it. kind regards Sharon

Sharon Erdrich
Don
Don on 09 Jul 2021
Found your card today at reception. Finding this givealittle page was tricky. Maybe you can mention the givealittle page on your card stand.
$60
Sharon Erdrich

Thanks so much for contributing Don. It sounds like you took the long road.. Appreciate your perseverance!

Sharon Erdrich
Joshua
Joshua on 01 Jul 2021
Good luck on this important research!
$50
Tommi
Tommi on 22 Jun 2021
Hi Sharon, may your research help to conquer this mysterious and insdious disease! Regards, Tommi
$40
Sharon Erdrich

Thank you Tommi for contributing to my study fund. It's much appreciated. Perhaps you can help further by encouraging others to contribute too. The study website is now live; https://www.theFidgitStudy.com

Sharon Erdrich
Trevor
Trevor on 21 Jun 2021
Private
Sharon Erdrich

Thank you so much for your generous donation. Your support is greatly appreciated. If you have specific questions about the project, feel free to contact me directly!

Sharon Erdrich

Who's involved?

Sharon Erdrich's avatar
Created by, and paying to a verified bank account of, Sharon Erdrich on behalf of Women with fibromyalgia
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This page was created on 21 May 2021 and closes on 21 Nov 2021.