Help women with fibromyalgia by supporting research

$3,052 of $20,000 goal
Given by 43 generous donors in one year

Your donation will fund research exploring the role of the gut microbiome in symptoms & digestive problems in NZ women with fibromyalgia.

Auckland

Fibromyalgia is a chronic pain condition, poorly understood and difficult to treat.

The majority of sufferers are women. They live with constant pain, fatigue, headaches, digestive problems, sleep disturbances and more. It restricts their ability to function normally on many different levels.

This invisible condition has no obvious disability nor apparent cause, therefore patient experiences are often dismissed. Treatment options are limited and include pain killers, antidepressants and anticonvulsant drugs. No treatment is fully effective and many have to live with the symptoms their entire lives.

Studies have found that patients have AT LEAST one digestive problem, but how these relate to their symptoms is unclear. Often a patient’s symptoms change in relation with digestive function, but no-one knows why.

This research project aims to uncover more about this illness, which may provide information to help guide potential new treatments that target the digestive system and its microbiome to improve symptoms and quality of life in people living with fibromyalgia.

Our aim is to investigate whether gut bacteria are connected to other health problems, such as headaches, fatigue, sleep problems and digestive complaints, as well as other symptoms of fibromyalgia in New Zealand women. The suite of tests includes:

Stool microbiome (shotgun metagenomics),

Breath tests x3 (lactulose, glucose & fructose challenges),

Oral microbiome (shotgun - on those with elevated baseline breath gases),

Blood (RNA, BGL, electrolytes, FORT/FORD test),

Environmental mould (house),

Comprehensive questionnaires, and

Urine for Intestinal permeability (aka "leaky gut")

For more information visit the study website; https://www.theFidgitStudy.com

Sharon Erdrich's involvement (page creator)

I am co-ordinating the research project.

Use of funds

Your contribution will help pay for testing for intestinal hyperpermeability (also known as leaky gut). The cost of this is $130 per person - we plan to recruit 100 women for this study. With extra money, we can check other markers in the urine as well.

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Latest update

Update image

Global Fibromyalgia Awareness Day  2 May 2022

Thanks to the enthusiasm of volunteers, we now have 60% of our target enrolments. Healthy controls are lagging a little at just over 40% of the goal.

I'm constantly amazed at how many people ask "what is that" when I say I'm researching a condition called Fibromyalgia. Yet about 1 person in every 20 has it.

People suffering with fibromyalgia are a hidden minority. So many women enrolling in the study have commented on how grateful they are that someone is interested in the condition and is trying to find answers, because they really haven't had any! So far recruits have travelled from Tauranga, Northland, Taranaki, Wellington, Nelson and Christchurch to participate in the study. And I want to say "Thank You" to them. Our fundraising efforts are more challenging - so I'm asking for you to help us again!

May 12th is Global Fibromyalgia Awareness Day. Please can you help to raise awareness of this condition by posting or commenting about fibromyalgia and this research project. Here are some ideas of how you can help to raise the profile of fibromyalgia:

- Use your social media to share facts, stats, figures and life stories about fibromyalgia.

- Host a fibromyalgia awareness event to raise funds for research (enter our CrowdFunder)

- Print out posters - email me for one! Put it up at your place of work/school/college

- Wear a fibromyalgia purple ribbon and talk to people about the disease when they ask why you’re wearing it.

IF YOU HAVE FIBROMYALGIA

- If you haven't done it already, tell people you have fibromyalgia

- Set up a Facebook page for people in your community with fibromyalgia.

- Join or host a local support group (or a virtual one)

- Contact your MP to talk about funding for fibromyalgia research and treatment.

- Become an advocate for fibromyalgia and speak out to the medical community and the media.

- Record your story on a video - post to YouTube (or do a Facebook LIVE) - Tell people about fibromyalgia and what it’s like to live with it.

Thanks so much!

Sharon & The FIDGIT Study Team.

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Latest donations

Guest Donor
Guest Donor on 19 May 2022
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Guest Donor
Guest Donor on 17 May 2022
I am one of the sufferers. It has had a massive impact on my life. As well as being intolerable at times I have also learned a few things. I would still much prefer to be well!!!!l It is disgusting that there isnt more research done on fibro, probably mostly due to the fact that it isnt easy money for the pharmaceutical industry. I am deeply grateful Sharon and would be happy to be a participant in your research, provided i dont have to travel
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Sharon Erdrich

Thanks so much for your contribution! It's great that you understand the importance of this work. The study is being conducted in Auckland, and requires one visit to the study site in Mt Albert. Here's the to the eligibility survey link: https://redcap.sydney.edu.au/surveys/?s=3FMMPLHY79TLYJNN Thanks again Sharon

Sharon Erdrich
Christine
Christine on 16 May 2022
Sharon you're doing such great work and Frank and I want to support you in your research to benefit those with fibromyalgia.
$100
Sharon Erdrich

Thank you so much for your support - I really appreciate it. Hoping you are ready/willing/able to share amongst your networks! Warm regards Sharon

Sharon Erdrich
Amanda
Amanda on 15 May 2022
Thank you Sharon for doing this for all of the fibromyalgia/CFS sufferers out there (myself having being there and recovered). Also the help you gave me as a patient. All the best xx
$40
Sharon Erdrich

Thank you so much for your support - I really appreciate it, and I'm glad you are doing better. I hope you can share about the study and the crowdfunder amongst your networks! Don't hesistate to let me know if you need some material! Warm regards Sharon

Sharon Erdrich
Laura
Laura on 14 May 2022
From someone who has suffered from cfs, I understand the struggle of a chronic health condition with very few answers and I appreciate all you are doing to help these people.
$40
Sharon Erdrich

Thank you so much -I really appreciate it. There is a big overlap between CFS and fibromyalgia - maybe our findings will be useful in the CFS research space as well. If you can share the study link amongst your networks I'd be grateful - https://thefidgitstudy.com Warm regards Sharon

Sharon Erdrich

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Created by, and paying to a verified bank account of, Sharon Erdrich on behalf of Women with fibromyalgia
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This page was created on 21 May 2021 and closes on 21 Aug 2022.