Help women with fibromyalgia by supporting research

$2,525 of $20,000 goal
Given by 33 generous donors in around 6 months

Your donation will fund research exploring the role of the gut microbiome in symptoms & digestive problems in NZ women with fibromyalgia.

Auckland

Fibromyalgia is a chronic pain condition, poorly understood and difficult to treat.

The majority of sufferers are women. They live with constant pain, fatigue, headaches, digestive problems, sleep disturbances and more. It restricts their ability to function normally on many different levels.

This invisible condition has no obvious disability nor apparent cause, therefore patient experiences are often dismissed. Treatment options are limited and include pain killers, antidepressants and anticonvulsant drugs. No treatment is fully effective and many have to live with the symptoms their entire lives.

Studies have found that patients have AT LEAST one digestive problem, but how these relate to their symptoms is unclear. Often a patient’s symptoms change in relation with digestive function, but no-one knows why.

This research project aims to uncover more about this illness, which may provide information to help guide potential new treatments that target the digestive system and its microbiome to improve symptoms and quality of life in people living with fibromyalgia.

Our aim is to investigate whether gut bacteria are connected to other health problems, such as headaches, fatigue, sleep problems and digestive complaints, as well as other symptoms of fibromyalgia in New Zealand women. The suite of tests includes:

Stool microbiome (shotgun metagenomics),

Breath tests x3 (lactulose, glucose & fructose challenges),

Oral microbiome (shotgun - on those with elevated baseline breath gases),

Blood (RNA, BGL, electrolytes, FORT/FORD test),

Environmental mould (house),

Comprehensive questionnaires, and

Urine for Intestinal permeability (aka "leaky gut")

For more information visit the study website; https://www.theFidgitStudy.com

Sharon Erdrich's involvement (page creator)

I am co-ordinating the research project.

Use of funds

Your contribution will help pay for testing for intestinal hyperpermeability (also known as leaky gut). The cost of this is $130 per person - we plan to recruit 100 women for this study. With extra money, we can check other markers in the urine as well.

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Latest update

Living with fibromyalgia  13 November 2021

Hi all supporters of The FIDGIT Study. I've added an interview with a woman who has had fibromyalgia for many years. Her story is not uncommon.

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Read 9 more updates

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Latest donations

sandra
sandra on 12 Nov 2021
$40
Sharon Erdrich

Thank you for your support - it's much appreciated. I'd also love it if you could also help spread the news about the study!

Sharon Erdrich
Lynda
Lynda on 12 Nov 2021
$50
Sharon Erdrich

I am really grateful of your support. Thanks so much! Please feel free to spread the news.

Sharon Erdrich
Zahra
Zahra on 10 Nov 2021
Good luck
Private
Sharon Erdrich

Thank you ! xx

Sharon Erdrich
Matt
Matt on 09 Nov 2021
$40
Sharon Erdrich

Thanks so much Matt. Really appreciate it!

Sharon Erdrich
Pia
Pia on 09 Nov 2021
With best wishes
Private
Sharon Erdrich

Thank you so much for your support.

Sharon Erdrich

Who's involved?

Sharon Erdrich's avatar
Created by, and paying to a verified bank account of, Sharon Erdrich on behalf of Women with fibromyalgia
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This page was created on 21 May 2021 and closes on 10 Feb 2022.