Your donation will fund research exploring the role of the gut microbiome in symptoms & digestive problems in NZ women with fibromyalgia.
Auckland
Fibromyalgia is a chronic pain condition, poorly understood and difficult to treat.
The majority of sufferers are women. They live with constant pain, fatigue, headaches, digestive problems, sleep disturbances and more. It restricts their ability to function normally on many different levels.
This invisible condition has no obvious disability nor apparent cause, therefore patient experiences are often dismissed. Treatment options are limited and include pain killers, antidepressants and anticonvulsant drugs. No treatment is fully effective and many have to live with the symptoms their entire lives.
Studies have found that patients have AT LEAST one digestive problem, but how these relate to their symptoms is unclear. Often a patient’s symptoms change in relation with digestive function, but no-one knows why.
This research project aims to uncover more about this illness, which may provide information to help guide potential new treatments that target the digestive system and its microbiome to improve symptoms and quality of life in people living with fibromyalgia.
Our aim is to investigate whether gut bacteria are connected to other health problems, such as headaches, fatigue, sleep problems and digestive complaints, as well as other symptoms of fibromyalgia in New Zealand women. The suite of tests includes:
Stool microbiome (shotgun metagenomics),
Breath tests x3 (lactulose, glucose & fructose challenges),
Oral microbiome (shotgun - on those with elevated baseline breath gases),
Blood (RNA, BGL, electrolytes, FORT/FORD test),
Environmental mould (house),
Comprehensive questionnaires, and
Urine for Intestinal permeability (aka "leaky gut")
For more information visit the study website; https://www.theFidgitStudy.com
I am co-ordinating the research project.
Your contribution will help pay for testing for intestinal hyperpermeability (also known as leaky gut). The cost of this is $130 per person - we plan to recruit 100 women for this study. With extra money, we can check other markers in the urine as well.
RECRUITMENT IS COMPLETE 19 August 2022
Hello all FIDGIT study supporters. It has been incredible, just how willing women in New Zealand with fibromyalgia have been to get involved in the study - they have come from far and wide, and now we have reached our goal.
As of today, 109 women with fibromyalgia have enrolled in the study and 55 healthy controls have given generously of their time to participate.
Thank you so much for being a financial contributor. While we have not reached our fund-raising target, your support helps to cover at least some of the costs associated with recruitment, sample collection and equipment expenses. Thank you so much.
This fund-raising page is expiring late on Sunday. So if there is any way you can share the link as soon as possible, I would be very thankful.
Thanks so much.
Kind regards
Sharon
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Sharon Erdrich (MHSc, PhD Cand.)
Based in Auckland, NZ
M: +64272393003
School of Pharmacy.
University of Sydney
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