Thanks to the enthusiasm of volunteers, we now have 60% of our target enrolments. Healthy controls are lagging a little at just over 40% of the goal.
I'm constantly amazed at how many people ask "what is that" when I say I'm researching a condition called Fibromyalgia. Yet about 1 person in every 20 has it.
People suffering with fibromyalgia are a hidden minority. So many women enrolling in the study have commented on how grateful they are that someone is interested in the condition and is trying to find answers, because they really haven't had any! So far recruits have travelled from Tauranga, Northland, Taranaki, Wellington, Nelson and Christchurch to participate in the study. And I want to say "Thank You" to them. Our fundraising efforts are more challenging - so I'm asking for you to help us again!
May 12th is Global Fibromyalgia Awareness Day. Please can you help to raise awareness of this condition by posting or commenting about fibromyalgia and this research project. Here are some ideas of how you can help to raise the profile of fibromyalgia:
- Use your social media to share facts, stats, figures and life stories about fibromyalgia.
- Host a fibromyalgia awareness event to raise funds for research (enter our CrowdFunder)
- Print out posters - email me for one! Put it up at your place of work/school/college
- Wear a fibromyalgia purple ribbon and talk to people about the disease when they ask why you’re wearing it.
IF YOU HAVE FIBROMYALGIA
- If you haven't done it already, tell people you have fibromyalgia
- Set up a Facebook page for people in your community with fibromyalgia.
- Join or host a local support group (or a virtual one)
- Contact your MP to talk about funding for fibromyalgia research and treatment.
- Become an advocate for fibromyalgia and speak out to the medical community and the media.
- Record your story on a video - post to YouTube (or do a Facebook LIVE) - Tell people about fibromyalgia and what it’s like to live with it.
Thanks so much!
Sharon & The FIDGIT Study Team.