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Help women with fibromyalgia by supporting research

  • I need your help - again!

      28 June 2022

    Hello FIDGIT study supporters.

    I'm so grateful for your backing of this project and .. I need to ask for your help. I have just under two months left to raise enough money to cover some of the costs associated with sample collection - purchasing of equipment.

    Could you please share the fundraising page link with friends and family? On social platforms or in emails? So far 86 women with fibromyalgia have enrolled in the study, and 37 controls. We hope to complete enrolment within the next 5 weeks, which is fully occupying.

    The quest for a generous benefactor is ongoing, but in the meantime every bit - small and large - helps.

    Thanks in advance.

    Warm regards

    Sharon

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  • Global Fibromyalgia Awareness Day

      2 May 2022
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    Thanks to the enthusiasm of volunteers, we now have 60% of our target enrolments. Healthy controls are lagging a little at just over 40% of the goal.

    I'm constantly amazed at how many people ask "what is that" when I say I'm researching a condition called Fibromyalgia. Yet about 1 person in every 20 has it.

    People suffering with fibromyalgia are a hidden minority. So many women enrolling in the study have commented on how grateful they are that someone is interested in the condition and is trying to find answers, because they really haven't had any! So far recruits have travelled from Tauranga, Northland, Taranaki, Wellington, Nelson and Christchurch to participate in the study. And I want to say "Thank You" to them. Our fundraising efforts are more challenging - so I'm asking for you to help us again!

    May 12th is Global Fibromyalgia Awareness Day. Please can you help to raise awareness of this condition by posting or commenting about fibromyalgia and this research project. Here are some ideas of how you can help to raise the profile of fibromyalgia:

    - Use your social media to share facts, stats, figures and life stories about fibromyalgia.

    - Host a fibromyalgia awareness event to raise funds for research (enter our CrowdFunder)

    - Print out posters - email me for one! Put it up at your place of work/school/college

    - Wear a fibromyalgia purple ribbon and talk to people about the disease when they ask why you’re wearing it.

    IF YOU HAVE FIBROMYALGIA

    - If you haven't done it already, tell people you have fibromyalgia

    - Set up a Facebook page for people in your community with fibromyalgia.

    - Join or host a local support group (or a virtual one)

    - Contact your MP to talk about funding for fibromyalgia research and treatment.

    - Become an advocate for fibromyalgia and speak out to the medical community and the media.

    - Record your story on a video - post to YouTube (or do a Facebook LIVE) - Tell people about fibromyalgia and what it’s like to live with it.

    Thanks so much!

    Sharon & The FIDGIT Study Team.

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  • 55% of recruits, 15% of our funds target

      29 March 2022

    We just haven't stopped. It seems that people with fibromyalgia are ever-so-grateful that there is a comprehensive investigation going on, and they are coming from all over Aotearoa/NZ to take part. Their stories are often very similiar - not being heard/believed, long time for diagnosis, feeling that no-one is really interested.

    As we rock on to our target of 100 volunteers, we would like to encourage you, our supporters, to share this page on your social media.

    When many give-a-little, it can add up to enough.

    Thanks again!

    Sharon Erdrich

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  • Progress

      21 February 2022

    Recruitment is active! And already we have almost half of our target of 100 women with fibromyalgia.

    Thanks again to everyone who has been involved in helping spread the news.

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  • Living with fibromyalgia

      13 November 2021

    Hi all supporters of The FIDGIT Study. I've added an interview with a woman who has had fibromyalgia for many years. Her story is not uncommon.

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  • Extended closing date

      10 November 2021

    Hi everyone. With the study finally underway, I've extended the closing date on the fundraiser... more time to share with friends and family. In case you haven't seen it, I was interviewed by Support Fibro a while ago. The link is below. Please share, especially with folk you know who have fibromyalgia or might have larger networks, to help increase the reach - we need to recruit 100 women!

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  • Interview with Melissa Talwar (from Support Fibromyalgia)

      4 November 2021

    Melissa works tirelessly as a patient advocate, to raise awareness and support research for people with Fibromyalgia. She interviewed me regarding the project.

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  • We are recruiting

      4 November 2021

    Hi everyone.

    Thanks so much for your support and interest in The FIDGIT Study. We have commenced recruitment, so please pass on the word to those you know who can pass on the word.

    Thanks

    Sharon

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  • Covid-19 Delays Recruitment

      31 August 2021

    Hello supporters and generous contributors to The FIDGIT Study. Unfortunately, right on the eve of rolling our recruitment, New Zealand had an incursion of the delta variant of SARS-CoV2, triggering us into a nationwide lockdown.

    When we return to Alert Level 2, we will be able to kick off our recruitment phase.

    Thanks again for your support - and .. it's never too late to spread the word!

    Stay safe out there!

    Sharon

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  • Premium Sponsor Confirmed

      29 June 2021
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    I thought I'd share this exciting update on the FIDGIT Study. We can confirm a partnership has been formalised with the USA-based Viome Research Institute. This fantastic collaboration means microbiome testing is provided, and all additional funds raised can be used to ensure we can run the blood and urine tests.

    Thank you again for your contribution to this project. Your generosity and willingness to share our quest is making this possible.

    To find out more about the programs Viome is involved in: https://www.viome.com/vri/studies

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  • Fundraising Target

      19 June 2021

    Our goal is to raise $20,000, which is the cost of running leaky gut testing for 200 participants (100 with fibromyalgia and 100 controls). Thanks for your help!

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  • We are getting there

      19 June 2021
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    Thanks so much for your generous support of this study. We are gathering resources for conducting testing and plan to start the study in the next few weeks. Please help by spreading the news, as recruiting is just as critical as fund-raising. We are still short of the $20,000 needed to complete the suite of tests, but every little bit helps!

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  • Off to a good start

      1 June 2021

    Hi generous donors.

    Thank you so much for contributing to the fund for my research. Just over $500 raised so far, which is $5 for every woman to be studied. . .

    We're hoping to start recruiting early July, so if you can help spread the word, that would be great. I've included a short video about the project - if I can raise $50 for every woman, that will pay for the blood tests, which would be awesome!

    Thanks again for your support.

    warm regards

    Sharon

    (on behalf of people who suffer with fibromyalgia)

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