Levi's 96Th Surgery And His Road To Recovery !

Levi and his older twin Konrad are identical micro twins (born extremly early)

From day one Levi has had to fight to stay alive .

He was born with N.E.C - Necrotizing Enterocolitis ( basically his bowel was dying)

He had life saving surgery at 9days old which resulted in major loss of his large Bowel.

Over the past 9 years Levi has endured the loss of his entire large bowel and 3/4 of his small bowel which has resulted in a total of 96 surgeries and procedures on his bowel alone .

Levi also suffers from Tetrology of Fallot (heart condition in which he has had some surgeries for )

I have created this page as this current episode that has resulted in a long stay in Christchurch hospital has been going on for 12 weeks so far ...

At the beginning of December 2018 , Levi became incredibly unwell his stomach was beginning to distend which caused him incredible pain .

By the beginning of January his distended abdomen had taken us back to what he looked like when he was born .

We had presented at Dunedin hospital on several occasions . I'll just add that Mr Levi is far from your normal kid and he never presents with symptoms you would look for normally.

A few weeks later we rushed to the Dunedins Emergency department as this time he was grabbing his heart , X-rays were done which showed massive amount of blockages / strictures in what bowel he had remaining.

A Helicopter was called for an emergency flight up to Christchirch hospital , Levi was in a very bad way , he wasn't strong enough and the surgeons decided the safest way was to get a line in him and get him as strong as possible before going in and trying to fix the main cause .

I am a single parent to the twins Levi and Konrad and also there 3 year old wee sister , I had not long started full time employment which ment I was not entitled to any paid sick leave , a few days after Levi was flown up to Christchurch , I made the heart wrenching decision to head back to Dunedin to work as I had no access to money and bills were stacking up with taking days off here and there .

I made sure that Levi was stable before I headed back to Dunedin, Levi's Nana came up to be with Levi while I went to work .

After a week of work I came back up , Levi was still in lots of pain but in himself relaxed , fast forward to today just over 5 weeks later and he has just completed round 3 of surgery .

I have no idea of what's next .

I have created this page in order to help relieve some pressure of the financial pressure of all the bills that are stacking up at home , as well as contributing for the care of Levis brother and sister back home and also allow me to do some amazing things with Levi when he is up to it that would take him out of the hospital .

There is no Cure for Levi and no end in sight .