Please help to try to keep it at bay by seeking the medical care I need. Perhaps it might avoid me getting cancer. This treatment is ongoing
Auckland
My life has turned upside down since I was diagnosed with Lichen sclerosus (LS). Lichen Sclerosus is a horrible autoimmune disease. It is a skin condition that makes the vulva look white, slightly shiny, and smooth. The skin’s surface becomes thin and delicate so that it bleeds, tears, and bruises easily, often causing tiny “blood blisters”. Lichen sclerosus caused my skin of the inner lips of the vulva to change and shrink and now disappeared completely. The entrance of the vigina narrows and can close up. Scar tissue forms. For example, scar tissue can cover the clitoris which is painful and can lead to vulva cancer. Struggling with urinating and painful at times. Currently on Steroid cream which makes my skin even thinner and does not help all of the time. Treatment such as Erbuim Laser needed, PRP and O shot to keep this horrible disease under control as there is no cure for it. This is not funded in New Zealand. Have to pay to see a Dermatologist, Gynaecologist. The sexual clinic in Auckland is not funded either. The hospital declined me. Cannot afford all this on a pension and I feel I do not have a quality of life at all.
Funds to be used to pay private care needed as it is not funded. Dermatologist and Gynaecologist. Need Erbuim Laser to inject deep into the skin. PRP and O shot. This treatment is a life long treatment. Steroids used daily
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