Life2Leah, Cystic Fibrosis (CF) sufferer, raising money to get a life changing drug called Trikafta.

Leah was diagnosed with Cystic Fibrosis at four weeks old after her heal prick test.

Cystic Fibrosis is New Zealand's most common, life threatening illness. CF effects the cells in the body that produce mucus, sweat and digestive juices, causing them to become thick and sticky.

Because of this, Leahs body doesn't absorb the fat from food so she takes enzymes every time she eats. Up to 30 pills a day. Her lungs also get clogged up with mucus, causing her to have a chronic cough and lots of lung infections. Requiring antibiotic treatments, hospitalization and IV treatments.

As a family, we have spent a large part of the last eleven years fighting for Leahs health. From simple things such as avoiding places or circumstances that are considered high risk to constantly feeding her medications and doing physio treatments. Meeting hospital appointments, talking to doctors, asking questions and learning lessons no family should have to learn.

We now continue to fight for Leahs health. There is a drug called Trikafta that is available from American drug company Vertex but it is not currently funded in NZ. It is available at an eye watering $469,000 per year. A sum out of reach of most and definitely our family.

This drug has the ability to entirely change Leahs life. Although she is still young, the damaged caused to her lungs now is irreversible, so we need to do everything we can to prevent any further harm. Trikafta has the ability to virtually reverse the effect CF has on Leahs body, it will never "cure" her of CF, but it is the closest thing to it.