Mum , dad , Lily’s brother and sister and us four grand parents put our hand prints on Lily’s beautiful ready bear covered casket .
Alex’s children ( Lilys sister and brother ) with Lily watching the bright pink ballon’s they let go disappear in to the heavens 🎈🎈🎈
Sorry this update has taken so long but it’s not easy . We had Lils every birthday and Christmas rolled in to one party in a beautiful setting on a friend of Alex and Charlenes farm surrounded by around 60 friends and family . Liliana was cremated and her mum and dad are bringing her to NZ as soon as they can organise it . I can’t thank you all enough for the donations and well wishes in this heart breaking time . I’ll try posting some pics of Lilys day . A huge thanks to the givealittle team especially Nomi for all your help . This page will close soon so if anyone wants to donate even $5 or $10 it will help them as they Transition in to living a life without Lily and get back on their feet .
It is with a heavy heart I have to let you all know that shortly after 7 pm ( 9 pm nz ) last night our beautiful Liliana passed away suddenly and unexpectedly with her mum and dad and nz nan and poppy by her side . The most beautiful girl with a magical smile and the most loving parents any baby could wish for . You will forever be part of us Lili for ever and always 💕💕💕 . Thankyou to you all . This page will be open a little longer and any donations will be kindly accepted and go towards Liliana’s funeral expenses
Im gutted for you all. My thoughts are with you. Liliana gave it her all with one hell of a fight. You have been a little angel for your family, now fly with the angels and watch over your loved ones. Sleep tight, rest in piece. 🙏
After such a great report a few days ago Liliana took a turn for the worst this morning and had another emergency chopper ride to Sydney hospital . Doctors are working on her and doing there best . She’s a fighter and got the best medical team available .. stay strong Lily you’ve got this 💕💕
Thinking of you all back in NZ 💕 we are praying for her
Love and strength being sent from England mate! Thinking of Lily and family. Keep fighting. X
Liliana has had a scan and check up from the heart specialists and got a massive thumbs up . She is now just over 4 kgs meaning her heart surgery would be in November however doctors have decided from what the scan showed she will have another scan in November and if things are still progressing as well they will leave operating until the new year . Thanks for all your donations and kind messages . This page will close soon and I’m not sure if I will be able to continue updates throughout the next few months and the operation on here so anyone wanting updates can txt me . . Thanks again for all the support.
Woohoo Liliana is now 3 months old and weighs 3.928 kgs so only 1.1 kgs until she reaches the 5 kg target .
Great news , Liliana had the tick of approval from the Heart specialists yesterday and after 9 weeks she has finally been discharged and is now at home in Tamworth for the time being . Hopefully she will stay well enough to stay at home until she reaches 5 kgs and goes in for her heart surgery .
That is wonderful news💗💗💗
Liliana is doing exceptionally well and today tipped the scales at 3.15 kgs woohoo Go Lily 🏋️♂️
Luke and the team at Wholley Cow Butchery in Cambridge have kindly cut and packed a whole lamb for us to raffle to raise funds for Liliana Alex and Charlene . It will be frozen as I haven’t organised tickets yet . Money can’t be paid directly through give a little so we will se up an account for ticket money to be paid in to and then transfer the total to thie give a little account . Also hoping we can courier the prize to the lucky winner any where in NZ . Ticket details will be posted here as soon as I organise them . A massive thankyou to Tommy ,Carrie , Luke and the team at Wholly Cow . Awesome guys .
Wow Awesome news on Liliana , she is packing on the grams , doctors had a meeting yesterday and are amazed at her progress . They have decided she is doing well enough that they are happy to let Charlene and Alex take her to stay with them at Ronald McDonald house next to the hospital for the time being . Such good news and it’s definitely a win but bittersweet as each day of progress brings her closer to her open heart surgery .
Liliana is progressing well , she started to run out of energy while drinking and doctors feared the tiny veins in her heart that are keeping her alive may be narrowing and she is to small to operate on but she seems a lot better the last few days and is gaining weight and getting stronger every day . A massive thanks to everyone who has donated and / or shared the page , if you want to , feel free to share it again with this update .
Keep fighting Liliana.. Best wishes to you and to all your family from the UK. Be strong! 💪