Lisa Brown - MND has curbed my bike riding but not my spirit and sense of adventure

$975 of $40,000 goal
Given by 17 generous donors in 11 weeks

Lisa Brown - Living with MND. Please support Lisa to engage in this journey by raising money to fund special nutrition and improvements.

Gisborne

Lisa Brown resides in Gisborne with her partner Andrew Champion. You might have seen them captured in a recent book by Ken Downie called "Kiwi Bikers" 85 New Zealanders and their motorbikes. In 2022 I worked as a service coordinator for under 65 NASC "needs assessment service coordination" in Gisborne. One of the last clients I had the pleasure of working with in that role was Lisa, I was captivated by her spirit for adventure, her humour and her zest for life, Lisa is a lady given the chance would be living life at a 100miles per hour, my job was to help set up her initial cares as she had recently been diagnosed with MND Motor Neurone Disease, yes she had received a membership to the "crappiest club". An assessment would usually take about an hour, I think we were still sharing stories over 2 hours later, she is a kindred spirit, and I knew that our meeting back in early 2022 was not going to be our last. While I have not been the most frequent of visitors over the last few years due to COVID and me training for new roles & being a little stretched, we have kept in touch. I am honoured that Lisa has the patience to let me pop into her life when I can. I am equally honoured that she has asked me to support her with developing this Give a Little Page. While MND has slowed down her physical interaction in life, it has certainly not slowed down her humour, and her fighting spirit to get the most out of this situation she finds herself in. Please support Lisa to keep moving FWD.

Kristine Twigley's involvement (page creator)

I met Lisa when I completed her Needs Assessment when she was first diagnosed with MND, while I no longer work in the NASC, she captured my attention with her life's escapades, I am a huge fan & love her adventurous spirit, we were destined to be friends.

Use of funds

Lisa Brown is a lady with a mission, like her life before MND, Lisa is determined to get as much as she can out of this life, and money will go towards special nutrition and researched improvements she can participate in to keep engaged in life. Thank you.

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Latest update

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WOW - awesome, what a great start to the fundraising. An update from Lisa 11/6/24  11 June 2024

Hi everyone, Lisa was able to email me a brief update this afternoon following the launch of the Give a Little page.

In her words....

"THANK YOU SO MUCH, you are awesome, Love it"

She is going through the messages, and really pleased to see the page started.

One of the "Special Needs" equipment she is wanting to urgently raise money for is a "Cough Assist Machine"

Lisa said that there on only one machine for "ward use only" in Gisborne. She said she has been to ED twice now and last time with no relief.

Even without voice, her gift of words is priceless. Let's just say the word "Cark" was part of the full message I received.

So Lisa has communicated that the machine is quite urgent now and that she will donate the machine to hospice when no longer needed. "her words not mine".

Also if anyone knows of anyone with a spare "cough assist machine" that can lend one....open to all options. It is a vital piece of equipment. In the meantime....let's all crank up the fundraising - thank you already to the awesome start....

Thanks in advance.

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Latest donations

Norma
Norma on 12 Jul 2024
Thinking of you
$100
Kristine Twigley

Thanks Norma, do keep in touch, please share post and much appreciated.

Kristine Twigley
Colin
Colin on 30 Jun 2024
Sending hugs
$100
Kristine Twigley

Thanks for hugs and donation, please share post and keep in touch.

Kristine Twigley
The Dublers
The Dublers on 23 Jun 2024
Motor on - the Dublers
$200
Kristine Twigley

Thank you, please share post and keep in touch. Awesome

Kristine Twigley
CRAIG
CRAIG on 18 Jun 2024
$50
Kristine Twigley

Thank you for donating please share post.

Kristine Twigley
Lloyd and Marie
Lloyd and Marie on 15 Jun 2024
Hi Lisa, missing you at the track.
$50
Kristine Twigley

Thank you for donating, please share post.

Kristine Twigley

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This campaign started on 11 Jun 2024 and ended on 31 Aug 2024.