Let's Show Our Love & Support for the Ramos Family
Adan has developed a chest infection after his bilateral hip surgery, and we'd like to support Ian, Angela & their family.
Auckland
Our little warrior Adan has a rare genetic syndrome that affects several parts of the body and is characterised by developmental delays, heart abnormalities, feeding difficulties, increased tumour risks, and a range of orthopaedic complications.
Adan has recently undergone bilateral hip surgery. It went well, however, he developed several complications that required him to be re-intubated. He is now recovering in the Paediatric ICU at Starship Hospital. His parents, Ian and Angela, are there full time to provide love, care and support.
We are thankful for NZ public health but there are also other costs and concerns involved such as petrol (they travel from Helensville to Starship daily), parking fees, meals, etc.
As friends of Ian and Angela, we have seen their strength and love for their family; we have witnessed how generous they are in extending help and support to other people and to their community. We now would like to appeal to your kind hearts to contribute what you can to make this journey a little bit easier for them.
We ask for prayers for Adan's full recovery, and for strength and peace for the family.
Thank you and may God bless you abundantly.
April Santayana's involvement (page creator)
We are friends of the Ramos family, and they are like family to us.
Use of funds
Funds will be raised to help with day to day expenses as the Ramos family supports Adan in his journey to full recovery.
Latest update
Update from Mum and Dad 4 August 2017
Moving Forward...
Almost a month has passed since our last post so we have lots of updates for you!
We celebrated Adan's 4th birthday with a Moana party on the 23rd of July. Our friends including some of his nurses came in dressed in Hawaiian or Moana outfits. A big chocolate cake was shared with the PICU staff - it was a huge cake and was able to cover two shifts in PICU. It was a very special birthday celebrated with special people in Adan's life.
Our family and closest friends are aware that a DISCHARGE MEETING was scheduled today. You all heard it right...Discharge Meeting. Just to keep everyone's excitement level on the right track, it will still take some time before we can actually go home because of two things. First, Ian and I need to complete two more items in our list of things to learn and second, we need to recruit for a night carer for Adan at home. This means that Ian and I will manage Adan during the day (as we have been since he was born), but will need another person to manage him at night as there is now the danger of him pulling his tracheostomy.
The gist of today's Discharge Meeting:
1. Adan will move up the wards on Monday, 7 August. Ian and I will look after him during the day and another person to be hired by ADHB (Auckland District Health Board) will look after him overnight (while we are at the wards).
2. Ian and I to finish our training by Monday.
3. ADHB to recruit for a night carer for home (could be the same person who will look after Adan starting Monday night in the wards). Our timeline for going home will depend on this.
4. No renovations to be done at home at this point as we are still able to carry Adan up and down our house because he has been off the machine since last month. Meaning, it would be just like before when we would carry him in and out of the house.
So we do not have a date yet for going home but at least, after 88 days, we are now looking at moving forward.
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