For our clients living with a disability, every day can be like running a marathon. I am running this marathon to support these people.
I am currently training to run the Rotorua marathon on the 30 April; it is terrifying and exciting in equal measure. It’s hard and I am hurting, but with hours out pounding the roads I have a lot of time to think. I have been thinking about the people that I have had the privilege to know and to work with for the last 10 years, those who are living daily with the challenges of Multiple Sclerosis, Huntington’s disease and ME/CFS. I have a choice, this is really hard for me but I can say “enough” and stop anytime. People living with disability don’t have the choice and for some every single day is like running a marathon. Some of our client’s stories are simply heartbreaking but I know that agencies like the one I work for, MS Waikato Trust can offer a glimmer of hope for many when things are really hard.
I believe very passionately in the work we do, but with all agencies like ours funding is an ongoing issue so with that in mind I thought that by fundraising while I do the marathon I can honour and acknowledge the people that I care about and make the run more meaningful. It also means I can’t quit! If you feel able PLEASE support this very worthy cause, every little bit helps.
MS Waikato provides support services to people affected by Multiple Sclerosis, Huntington's Disease and allied neurological conditions. Established in 1963 MS Waikato provides support services that would otherwise be unavailable to our clients and their families.
Our staff works closely with people who are newly diagnosed, supporting them with reliable, robust and up to date information together with symptom management strategies for themselves and their family. This is undertaken as soon as possible after a diagnosis, we continue with information and education whenever it is needed. We work hard to support our people when they are unwell, are often the link between them, the hospital and community services, offering suggestions and pathways for care and support. We support clients at appointments with health providers and other related organisations, like WINZ. Our clients are supported with all aspects of life that their condition may affect; sometimes this is through being an advocate with other agencies.
MS Waikato also provides education to other health professionals; offers in-service education to resthomes and community living homes and works hard to educate the general public.
Our service provision covers the greater Waikato and homes visits are provided as necessary from Whitianga to Taumaranui.
Liz's update - after the event! 2 May 2016
A huge thank you to all the wonderful people who got behind the fundraiser, the amount raised was amazing. I am happy to report that I survived (have the shirt and medal to prove it) and actually enjoyed the event. The weather was perfect and I had lots of lovely supporters on the day. I wore the “Kiss goodbye to MS” shirt with pride and felt honoured to run for the clients of MS Waikato. For those interested in time, I managed the 42km run in 5hours and 13 seconds!
Thanks again for the fabulous support.