1st July 2021
What a week!! 😅
Ya could say our week has been a little like Wellington's weather...
Mon/tue/wed....Crap!!
Thursday was looking a little bit more sunnier 😊
Lox was admitted BACK into Wellington hospital on monday morning.
CT scan showed there is something sitting in the bottom of his left lung.
Possibly an infection, results are still pending, but it's been treated with antibiotics.
Why is lockyer always in hospital?.
Loxz condition (Server Aplastic Anemia) has caused lockyer to have no neutrophils.
No Neutrophils means 0 immune system so Lockyers body doesn't have a defense mechanism when it comes to catching infections or helping its self to heal like a normal person would.
Catching a virus or infection from an infected person could take as little as a hand shake.
Helping lox to clear that virus/infection takes 3 times longer and needs hospital admission to do so.
Loxz has been on daily medicine for the past 4 months to help prevent these situations, but these medicines only cover some viruses and not all.
Loxz is fed up with his condition...
And we dont blame him...
It's like for every step forward we can happily take, we are dragged 2 steps back screaming and shouting 😑
We cant tell if the ATG treatment is working because he keeps getting sick.
We have until the end of this month and they start moving Into phase 3 which is "Prep phase" for a 2nd attempt at finding a bone marrow donor or tissue manipulation of either myself or Jeff.
Lockyer has his good days and he has his bad.
Not everything is smiles!!
He constantly tells me his body is tired.
He just wants to be at home.
He suffers from major PTSD and still hasn't recieved help from Wellington hospital for something that was caused in their hospital due to misdiagnosis 🙄
He is Brave, courageous and Resilient!!
This is what we tell lox every day ❤
#teamlox
#photo Before and after lockyer went in for a lung biopsy, he was awake for most of the procedure and slept for hours after lol.
Tonight he is home with his siblings ready to have dinner before having to go back to hospital.
