Main image

Lockyer's Bone Marrow Journey

Cause page created in the Health category by jeff Risati


$18,546 donated
Given by 214 generous donors in 10 weeks

Help Lockyer get his siblings to and from the Airports and hospitals as he endures a bone marrow transplant.

Main image
  Wellington

Hi my name is Lockyer and I'm 12 years old.

Recently I've been diagnosed with a rare condition called Aplastic Anemia. Which means my Bone Marrow isn't producing enough red blood cells, white blood cells and platelets. These 3 things are vital to my health. (Blood Cells carry oxygen, White Cells fight infections, Platelets form clots to help with bleeding and bruising).

I had a check up in early March with my GP after myself and my parents had notice strange bruising and blood spots (Petechiae) appearing on my body. They sent me to Wellington Hospital. The next day I was sent on a life flight down to Christchurch.

And now I've been in and out of hospital between Christchurch, Wellington and now Auckland.

My. Immune system is 0.01.

I have numerous blood tests done to me.

As well has having Blood and Platelet Transfusions every so often.

There are 2 ways of treating my rare condition.

1 being a bone morrow transplant. My siblings were tested to see if they were a match but unfortunately the match I needed, needed to be a tissue match.

That sucked.

The other 1, is immunosuppression drugs, that I take up to 3 months that suppresses my immune system as it's attacking itself.

Best option is the bone marrow transplant with the same blood type and tissue as me.

And because none of my siblings are a match, we have to cast our net World Wide to see if a bone marrow transplant donor exists.

I'm the middle child of 5, I have an older brother and a older sister, a younger sister and little brother who just turned 5.

Even though I'm going through all this scary stuff, the thing that scares me the most is not having my siblings with me so we can be a family. I also know that my siblings will miss me and our parents aswell.

They will either be with me up in Auckland or down in Christchurch.

So this page will help go towards travel costs for my siblings to come and visit me while I'm in recovery in the weekends. And to make my recovery as comfortable as possible because it is going to be a long journey.

Any help is good help and myself and my family would appreciate all the help that we can get.

All funds and donations will be strictly for my brothers and sisters to visit me while I'm at Christchurch Hospital and Starship hospital.

Thank you to all friends and family and to the kind strangers that are also helping, your contribution is truly appreciated.

God bless you all and much love... Plus I want to make it to the NRL.

LOCKYER.

jeff Risati's involvement (page creator)

Hi my name is Jeff Risati and I'll be monitoring his page on his behalf.

I'm Lockyer's Father.

Use of funds

All funds raised, will be strictly for travel related cost purposes only. Any surplus will go towards making Lockyer as comfortable as possible.

Other page links


Latest update

Update image

Knowing my body...   13 June 2021

Posted by: jeff Risati

Imagine a 12yr old having to tell a hospital to re test something because he KNOWS they've gotten it wrong?!

Imagine those results returning and that 12yr old being right!!

When Lox was first diagnosed with SAA (Severe Aplastic Anemia) we had to tell Lox to "Relearn" his body and he had no choice but to adjust to his condition and to always raise his concerns because his voice matters!!

He has learnt what every pill is for and what every pill does to help him.

He even knows the name of every pill he takes or has taken.

He knows when he is low on platelets and knows the signs of when it is he needs a transfusion!

He has learnt his body and condition down to even being able to read his own body temperature with out a thermometer. So before the nurses check they ask him "guess the temperature" and most times he's a winner!

This morning he had bloods drawn to check medication levels, platelet levels and hemoglobin levels.

The results returned a hemoglobin level of 31.

Straight away he requested them to check again....2nd test revealed his levels are actually at 80!

Thank god, because he would have been hooked up to a machine for 4-6 hrs today and ain't nobody got time for that on a Saturday 😏😂

He makes us so proud!! 😊

His opinions matter and his voice is always heard!! 💪 and he had no choice but to adjust to his condition and to always raise his concerns because his voice matters!!

He has learnt what every pill is for and what every pill does to help him.

He even knows the name of every pill he takes or has taken.

He knows when he is low on platelets and knows the signs of when it is he needs a transfusion!

He has learnt his body and condition down to even being able to read his own body temperature with out a thermometer. So b4 the nurses check they ask him "guess the temperature" and most times he's a winner!

This morning he had bloods drawn to check medication levels, platelet levels and hemoglobin levels.

The results returned a hemoglobin level of 31.

Straight away he requested them to check again....2nd test revealed his levels are actually at 80!

Thank god, because he would have been hooked up to a machine for 4-6 hrs today and ain't nobody got time for that on a Saturday 😏😂

He makes us so proud!! 😊

His opinions matter and his voice is always heard!! 💪

Read 7 more updates  |  Share this update


Latest donations

NBR Functional Training & Streetwise Porirua
NBR Functional Training & Streetwise Porirua on 08 Jun 2021
Kia kaha whānau , everyone here in Porirua is behind you ❤️💛💚
$2,000
Monica
Monica on 05 Jun 2021
Sending love from my family to yours 💜
$20
jeff Risati

Thank you for your kind words and support. From 1 family to another we really do appreciate it. ❤️✌️✌️✌️ Jeff and Family

jeff Risati
Stacey
Stacey on 04 Jun 2021
BNG Stacey Owen & Sara Swanney x2 tix
$20
jeff Risati

Thank you for your support Stacey and Sara, see you tonight. 🔥🔥🔥 Jeff and Family

jeff Risati
Isacc
Isacc on 04 Jun 2021
Private
jeff Risati

Thank you for your continued support Isacc. 🔥🔥🔥 Jeff and Family

jeff Risati
Isacc
Isacc on 04 Jun 2021
Private
jeff Risati

Thankyou Isacc for your support. 🔥🔥🔥 Jeff and Family

jeff Risati

Who's involved?

jeff Risati's avatar
Created by, and paying to a verified bank account of, jeff Risati

Page Moderated The page has been checked by our team to make sure it complies with our terms and conditions.

Fundraise

You can start a fundraiser to have your own page that raises money directly for the beneficiary.

Want to get in touch with jeff Risati?

One question has been asked already. Check it out and ask yours here.

Want to display a QR code that links to this page?

Grab a QR Code

Any concerns?

Report this page
This page was created on 14 Apr 2021 and closes on 13 Oct 2021.
Share
Share a link to this page to help spread the word

  Facebook

  Twitter

  LinkedIn

  Email

  Copy Link

  Embed

  QR Code

×