Lydia's journey to 2 feet on the ground

Hi Lauren,

I have a page on Facebook (https://www.facebook.com/LemonAngels1) it has been set up to focus on those who do good in the world. I would like to use it to promote those who need help getting donations by doing an interview to share there story and increase exposure. I then put a small amount of adversting behind it to reach more people.

I do this at no cost and with no agenda, it’s something I enjoy doing ( Call it doing my part to make a difference)

If this is something that you are interested in being a part of drop me an email paul@lemonangels.com

Hi Lauren,

I mentioned briefly in the front page that I also had had two leg lengthening operations and have read the comment from Michael and Christine Waldron and was wondering if you could please pass this on to them as I am unable to reply to their comment.

I also had Dr Bellemore as my surgeon for my leg lengthening procedures, my first in 1998 and I am from Shell Cove, NSW

I would be interested to learn more about Scott’s progress and his foot. I only have a partial foot and have recently got a prosthetic foot that I sometimes wear which is very lifelike. My legs are the same length now

Thank you for sharing Lydia’s story, it’s lovely to be able to connect with people who have had similar journeys!

Keiri Vernon

Hi Lauren, We have very interested in reading your story and would like to share our own experience with this condition. Our son Scott was born in Cowra Australia in 1988 and had a very similar condition to Lydia, called then fibula hemophilia, his foot was much worse than what Lydia looks like and

he had no real ankle, amputation was suggested. His right leg was thin and no tibula was present.

We had a specialist appointment with a Dr Michael Bellemore at Westmead childrens hospital Sydney and when he was eight he was fitted with a Ilizarov device during a 10 hour operation which was fitted from below the knee all the way to his foot which also had wires and pins attached, we were kept very busy adjusting and cleaning the pins realising a 8cm length increase over a nine month period, his discrepancy was reduced to just 10 milimetres. He also had a operation on his growth plate on his non effected leg so as to slow down and bring both legs closer to level

It is a long road and he is now leading a fairly normal life, we can send you pictures of his progression if you are interested.

We were lucky enough to have the full cost of his operations covered by Medicare.

Wishing you a successful outcome with your beautiful little girl,

Michael and Christine Waldron, Shellharbour NSW Australia

Hi Lauren it's Simon Mercep here from the team at Kea Kids News. I just wanted to follow up our interview with you and Lydia. Could I call you and what is the best number and time to do so please?

Many thanks

Simon