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Lydia's journey to 2 feet on the ground

Cause page created in the Health category by Lauren Golding for "Lydia Golding"


$24,120 of $360,000 goal

Given by 257 generous donors in 6 weeks

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Summary of request we are looking to raise $360,000NZD by the end of Sep 2020 and an additional $100,000NZD by April 2021.

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  Auckland

My Story (Lydia)

It all started as a normal love story. My Mummy and Daddy met, fell in love, got married and wanted to start a family. Their world then opened up to years of heartbreak as they tried to conceive. After 6 years of intense ivf treatments, medical mishaps and multiple baby losses, I was created. My Mummy and Daddy were so excited, it was a pretty easy pregnancy and I passed all my prenatal milestones.

On 1st April 2016 at 1pm we all went along for my 20 week scan. My parents faces were beaming and then came the dreaded long pause of silence. The room became eerie and my parents started to panic. The sonographer then looked up and said I need to consult with my superior but it looks like something's wrong with your baby's legs. My parents sat in the room for what felt like forever before she returned saying your GP will be in contact to refer you through to the maternal unit at the hospital. My parents were left feeling overwhelmed and confused.

My name is Lydia, Lydia Golding and I was born with PFFD (Proximal Femoral Focal Deficiency), this is a rare non hereditary birth defect that affects the pelvis, particularly the hip bone and the proximal femur which results with a deformed hip and a shortened leg. My particular class of PFFD is so rare that it is probably 1 in 500,000 babies. I was born with a shortened right femur approx. 50%, an unformed hip and a small femoral head.

My Mummy has spent hours on the phone, internet and emails to consultants from around the world. There is very limited information available about my condition. In NZ we travel from Auckland to Tauranga for consultations.

I have worn a prothesis since the age of 14 months, and have managed to walk, climb and play in my own unique way alongside my peers. However, as I grow older, prothesis are becoming increasingly more difficult to make, as my knee is up by my hip and this causes me to walk with a very large dipping gait. This will only become worse as I grow, and in the future will cause me a lot more problems including my back.

I require surgery to reconstruct my hip before multiple lengthening's of my leg can start, with the end goal of having 2 feet on the ground, something most of you take for granted.

It now seems the only way forward is for us to go to the US and get the surgery I need however this comes with very large costs. Our goal is to be there by October this year (2020).

The surgery I need cannot be done in New Zealand but can be done in America by Dr Paley of The Paley Institute in Florida. I will require 5 lengthening surgeries approx. ages 4, 7, 10, 13, 16, plus a growth plate on my longer leg approx. age 9 to reach my dream of having 2 feet on the ground.

Mummy will take over now. Her name is Lauren.

Lydia has an absolute heart of gold, an infectious smile, and melts people's hearts. We are hoping by sharing her story she will also melt yours and your donations will go towards achieving the very best outcome for our brave little girl, to fulfil her dream of walking with her own two feet.

If you have read this far, we as a family thank you for taking the time to at least hear our plea. If you have donated you have our utmost thanks and appreciation.

For more in depth details regarding the surgeries please feel free to visit our facebook page and give us a like.

Lauren Golding's involvement (page creator)

Mummy to our beautiful Lydia.

Use of funds

The money will be used to pay for Lydia's surgery/ies in the US, travel and living costs a new prothesis.

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Latest update

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Cake Auction  19 June 2020

Posted by: Lauren Golding

A beautiful school friend of mine is auctioning off a cake to try and raise some funds for Lydia's Journey to 2 feet on the ground. Please help share her facebook post so she gets some bids and while your there give her page a like her cakes are stunning. Thank you Rachel Hellens from https://www.facebook.com/Cakeology-1330503147019186/ for doing this for us 😘

Read 7 more updates  |  Share this update


Latest donations

  • Wayne & Chris

    Wayne & Chris 1 day ago

    $25

    Our good friends Maurice & Lorraine told us about you Lydia and we hope this will help you get to your goal.

    $25

  • David

    David 4 days ago

    $200

    All the best to little Lydia. I really hope you can make the target amount, to help Lydia on her way.

    $200

  • Craig

    Craig 5 days ago

    $10

    $10

  • Bridget

    Bridget 5 days ago

    $20

    Wishing you all the best!

    $20

  • Jono Higgins

    Jono Higgins 5 days ago

    $100

    All the best

    $100


Who's involved?

Lauren Golding's avatar
Created by, and paying to a verified bank account of, Lauren Golding on behalf of Lydia Golding

Page Moderated The page has been checked by our team to make sure it complies with our terms and conditions.

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This page was created on 20 May 2020 and closes on 31 Oct 2021.
$24,120 of $360,000 goal

Given by 257 generous donors in 6 weeks

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